Archive | July 2012

Jackson Update…Back in Action!

Alright, so after today’s appointment with our LLMD, I feel back in control of Jackson’s treatment and confident enough to blog about it, so let me fill you in.  Reflecting back on the past week, I believe I wanted to take a break in the blogging because I felt at a crossroads with Jackson’s treatments.  Do we continue Jackson under the care of our LLMD and continue the Lyme/Autism treatment or do we switch to over to Homeopathy?  A choice had to be made.  Our LLMD and Homeopathy doctor s know each other and respect each others’ work, but we cannot be doing both treatments together.  Allopathy vs. Homeopathy.  Ahhhhh!  I believe in both healers, so I was confronted with a hard choice that I didn’t want to make. Thankfully, with the guidance of Misha and my parents, we’ve figured out the next steps…

I left you a week ago after we had our appointment with a well known Homeopath.  I was so impressed with him and so confident in his healing abilities, that I left his office wanting to start Jackson on his remedies and his healing path immediately.  I loved the idea of not having to use antibiotics anymore, not having to follow such a rigid medication schedule and the idea of treating Jackson as a whole and not a product of his symptoms.  Though it felt so freeing to take a break from the Lyme treatment, something didn’t sit well with me that we just cut Jackson off completely so quickly from our LLMD.  So, I made an appointment with out LLMD to lay it all out on the table.

Today we met with our LLMD to have an open, honest conversation about our feelings about the Homeopathy path, Jackson’s medication schedule, our concerns and next steps. He was very understanding and reaffirmed his underlying desire for Jackson to get better, whether it’s him or the Homeopath.

There were some new test results in Jackson’s chart from a previous blood draw that confirmed the viral component in Jackson that our LLMD wants to have the opportunity to treat.  Our decision now for Jackson is that we are going to go after the virus hard for two months or so.  If by then we don’t see the improvements we’ve been hoping for, our LLMD said that Homeopathy would be a good idea to try.

So how are we going after the virus?  We’re bumping up the Valtrex to 250mg twice a day.  We’re hoping to see some die off reaction…a rash, fever, change in behavior for the worse.  After 10 days, I’ll call our LLMD and give him an update…whether Jackson showed a herx reaction or not.  Then, we’ll be delving into Hyperbaric Oxygen Chamber Therapy (HBOT).

There is an office right around the corner from us that have Hyperbaric Oxygen Chambers or we are contemplating renting one to keep right in Jackson’s room.  The goal is to do 40 hour long sessions in 4 weeks.  The HBOT reduces inflammation and helps with the viral load.  It’s going to be challenging keeping Jackson in the small chamber  for so long, but hopefully with the iPad, blankie and mommy with him, it won’t be so bad.

I’m hoping for some results in this next month from upping the dose of the Valtrex and HBOT.  Jackson will no longer be taking the antibiotics and we cut out a few other supplements that don’t need to be taken at the moment.  Jackson is back on his rigid medication schedule, but I feel a lot better about it knowing we have an end goal in sight and our next plan of attack should we not see the results we’re after.

John, our Homeopath, referred Jackson to see an Osteopath after hearing Jackson’s birth story and noticing Jackson’s head shape.  Jackson’s head is not abnormal looking, but it is shaped higher up in the back.  Today, we went to see the Osteopath.  At our hour long visit, the Osteopath took a detailed history of Jackson and then began his therapy of touch on Jackson.  Jackson was such a good boy!  He sat up on the table/bed (watching the iPad), and the Osteopath touched his back, neck and head for over 30 minutes.  Jackson is very affectionate and doesn’t mind people (he knows) touching him, but I was surprised at how at ease Jackson was with the Osteopath touching him.  Just by touching Jackson, the Osteopath could tell Jackson had digestive issues and inflammation in his stomach.  He also said that Jackson’s head is very tense and  tightly smushed together (those weren’t his exact words, but I can’t remember what he said:).  Through light touch and slight adjustments, he is confident he can help Jackson and see improvements.  My eyes have opened to new types of therapies I never before thought I would believe in.  I am excited to be introduced to this new world of healing.

These past 5 months have been busy, difficult and even a bit discouraging.  It’s draining putting so much time, effort and money toward treatments that have not shown the results we wanted.  I truly think it’s all part of the process of ruling out what doesn’t work and leading us to the treatment(s) that will eventually work on Jackson.  Like I’ve said a time and again, I know Jackson is in there and waiting to come out.  We’re getting closer and closer and the day will come when new milestones are met and Jackson progresses.  I promise you, I’m not crazy.  I haven’t lost my mind.  I am still the same Elaine everyone knows/knew.  I’ve been presented with this Autism obstacle, and it’s challenged me in every way imaginable.  I’m not giving up, not by a long shot.  This past week of insecurities has put me back in the driver’s seat, with a new surge of energy, ready to kick Autism (or whatever Jackson has) in the ass.

Coming soon…Mold and School District Updates.

The Truth Behind the Lies…

from: http://www.ageofautism.com/2012/07/the-truth-behind-the-lies-play-by-play-from-iacc-meeting.html#comment-captcha

The Truth Behind The Lies Play By Play from IACC Meeting

LiesBy LJ Goes

“Just  more BS…some guy says good luck…no way Congress is giving more money…”

“What now? I’m dying here.”

“…Geri (Dawson) now.  Liked her intro statements”

This is my friend, and fellow Co-Founder of The Thinking Moms’ Revolution, Kim Spencer and me, exchanging texts on Tuesday morning, July 10th, 2012.  She was giving me the play by play from the live stream feed of the IACC proceedings taking place in Washington, D.C. while my husband, our two sons, Liam and Noah, and I languished in yet another hospital waiting room in yet another state, awaiting time with a team of the country’s top research physicians. While most families make their yearly pilgrimage to Disney or take a road trip out west, we pile our kids into the car and head to Children’s hospitals. Our son Noah is quite ill and suffers from a misdiagnosis of autism.   Since the day he received his label we have been unable to get him sufficient medical care for his bowel disease, mitochondrial dysfunction,  autoimmune illness and central nervous system damage—all very common conditions in most children with “autism” that go undetected, untreated and ignored because of their iatrogenic nature.

The IACC, about which we were texting, is the Interagency Autism Coordinating Committee.  They are supposed to be the best and brightest of our country who’ve come together to resolve an inconvenient and expensive  problem sweeping the nation.   The CDC recently reported that 1 in 88 kids have autism.  Many of the folks who brought that statistic to the public have some form of interaction or involvement with the IACC.  Sadly, they did not mention they’ve not bothered counting kids under twelve.  So when they say 1 in 88, they mean tweens and up…not actual children.   So, so far, we know they do not share humanity’s common definition of the word “children” and they do not know how to count. Yet somehow, they have been charged with ending the autism epidemic.   As you may suspect, we are not off to a good start.

Kim:  More BS…

Me:  What are they saying?!

Kim:  (Department of Health and Human Services Head) Kathleen (Sebelius) saying she is not Sebelius pink jacketpersonally affected by autism?  Saying…everyone has done a great  job…

I was positioning my fingers to hammer out, “WT…”   when we finally got called back.  Our first two doctors were outstanding.  The metabolic geneticist was an absolute gem.  I make sure physicians read Noah’s labs in front of me because I have learned from experience they will be thrown into a pile and ignored otherwise.   He read them, commented and (special bonus!) asked questions.  He asked me if I saw a decline in Noah’s condition after vaccination and nodded sympathetically when I answered.  At the end of the day he is still a mainstream physician who cannot confirm or deny the medical reality of autism.  He’s just a cog in the wheel, helping the kids who meet certain criteria approved of by insurance and pharmaceutical companies, alike.  Lesser affected kids (whose parents were smart enough to stop vaccinating at the onset of symptoms) have probably greatly benefited from his knowledge.  He recommended a battery of tests and concluded our time together by asking us if we’ve ever suffered migraines.  “Well, for Noah, imagine that migraine is on-going and its taking place all over his body.”   While I found his empathy refreshing, it’s not what I need.  I need help.  I need to stop his pain. I am not in need of new ways to describe it. I need competent, inquisitive, effective, FEARLESS medical expertise.  In other words, I need doctors who are not pharma’s b*tches. Let’s get the tests done and get on it.  I. NEED. ANSWERS. NOW!  MY CHILD IS SUFFERING.

Next doctor please.

Noah’s anxiety was getting worse, his screaming and slaps, while constant, had grown particularly disturbing to those in the office and waiting room. The nursing staff took pity on us.  They brought us toys which Noah threw back at them.  They offered GMO juice, crackers and cookies which I threw back at them.

Doctor number 2, the pediatric neurologist and main attraction, arrived.  He took a detailed history and had mostly bad news to offer.  Many more tests were required, many we will have to pay for out of pocket, and if it these tests  do confirm he suffers the particular type of neurological damage we all suspect…the  recommended treatment often makes children more aggressive. I inquired about Noah’s ongoing bowel issues and he asked us if we could stay and see their resident gastroenterologist.  While he had a reputation for treating bowel disease “conservatively” he thought it was worth us visiting with him. We agreed.  After all, we’d come all this way and they are specialists here. The best of the best…

While we waited for the gastro nurse my phone was on fire with emails and Facebook posts—commentary about the IACC.

“They are actually congratulating themselves on a job well done…doesn’t matter what the parents say. They actually said it doesn’t matter.  The parents will say we didn’t do our job…but we did a great job…”

“I could cry. So disconnected…actually glad you cannot see this right now…”

“OMG, Merck exec appointed to the IACC?! Did you know this? Holy Sh*t!  What are they doing?”

After 4 and a half hours Noah had reached his threshold and the gastro nurse was having a hard time getting comfortable in the chair she’d asked Liam to vacate. Her way of handling it was to wince painfully just a tad more dramatically than the tone or impact of Noah’s screams and slaps warranted.  Because of the seating limitations I had no choice but to hover over her, watching as his story played out on the limited horizontal lines medical forms provide.  Like so many children with iatrogenic illness his story is over 4,000 pages at this point.  How does one condense it to a page and expect the transcriber to understand?  I wanted so badly to tell her the whole truth, but with these people—you can’t just spew your story. Every word has to be deliberately chosen. You have to use words like “immune compromise,” and “food sensitivities”.  Code words for, after his 12 months shots his brain, immune system, bowels, and central nervous system imploded. Could you please, PLEASE give a sh*t?!

Nurse with shot“Now mom…you put him on something called the SCD diet?”  She scrunched up her face and pinched her perfectly manicured nails together.  “What’s thaaay-t?”

“The therapy he’s on—you call that ABA?  What does that stand for now?  Noah screamed and pulled my hair, causing her to wince and rub her temple.  “Do you get him any therapy, like speech and OT?” I sincerely had the hardest time determining if she was for real or if I was just having autism mom hallucinations. Maybe she was new?  The optimist in me was trying to find the positive while the realist began to piece it together.  They did not appear to be autism specialists, at all.  They simply tolerate children with autism in their practice.  Big, BIG difference.

“All his vaccinations are up to date mom?”

“No. He had a reaction to DTap.”  “Yes,” Dave added, and the MMR.”   That. Is what. We said.  This is what she wrote:

“Mom stopped vaccinating at 3 years.”

I glanced over at the counter where my phone vibrated beside the seated nurse’s ear.

“All they give a f#%k about is the Genome Project.  Helping kids get better isn’t even on their radar.  There’s no money in healing kids. They are clueless.  I could vomit right now…cannot watch another minute. They…don’t care about the damage done, just the money to be made.”

This, for all autism parents who’ve done their homework, is the defining moment. It was a two day trip getting here; we had such measured positive interactions with the other docs. I just didn’t know if I should risk correcting her and being labeled an anti-vaccination parent.  Plus, I hadn’t seen the gastro yet.  He could be a rock star doc operating under the radar who understands the real science behind autistic entercolitis and I would miss out on him because I lost it with her.  I have a responsibility to this movement to identify and endorse the doctors who are really helping our kids.  But yet, I wanted to b*tch slap the arrogance out of this poptart so badly.

ClooneyThe super dapper gastro entered the room, saving me from myself. Noah’s file and pleasantries were exchanged.   The doc said he didn’t have our records as this was an unscheduled visit. For the record, I brought all our gastro/food allergy/sensitivity tests and documentation.  Complete with doctor’s interpretations. Without considering this, he interviewed us and ventured a hypothesis. Despite all Noah’s obvious auto-inflammatory issues, central nervous system failings and neurological damage, he thought that maybe it was…

Toddler Diarrhea.

To his credit, he was honest and said that that simply meant, “We don’t know what’s causing it.”  But, not to worry, “they often outgrow it”. He chuckled.

“Noah will be 6 in September.” I calmly stated. “We are unable to potty train him because of the ADHD-ritalin-children-diagnosedunstable nature of his bowels.”

He closed by suggesting I return soy to his diet (after I told him we’d had him tested by two different physicians whose evaluations showed an extreme sensitivity to soy).  Dr. Gastro also wondered if we had considered pursuing an ADHD diagnosis.  Psyche meds would probably help a child like Noah a lot.  He just knew they would.

Next, Noah was restrained for a period of 14 minutes to have his blood drained.  My husband held him down while four nurses worked to find and puncture his veins.  He screamed and fought, predictably  breaking blood vessels in his eyes.  I seethed as Liam covered his ears and cried.  “What are they doing mommy?”  A grandmother and father on opposite sides of the waiting room wept openly.  The grandmother came over and asked me about his diagnosis.  I very loudly stated, “He was vaccine injured.”  “Oh my!”  She put her wizened hand to her lips and her tears flowed like faucet water.  For some reason, I was just too pissed off at the gastro and his nurse to cry.  I have cried an ocean of hot tears for my son over the past 5 years.  Now?  I’m ready to fight.  She laid her hands on me and prayed. While this may offend some, I found it quite comforting.  She was truly devastated, hearing a sweet innocent boy suffer in a way that conveyed his personal hell so vividly.  So, she did what came naturally to her in the presence of human suffering.  Dave emerged, fatigued and exasperated.   The receptionist witnessed the whole thing.  She offered me her hand as I signed the exit paperwork.  “I am so, so sorry.  God bless you.”  She said—and she meant it.

We grabbed our vials of blood and headed for the nearest FedEx.  It is common knowledge among research physicians and their patients that you cannot trust hospital labs to take care of these sorts of tests—tests outside the mainstream, tests that are not covered by insurance—tests that are incriminating. They get misread, mislabeled and lost.  So, we dutifully shipped them along with our personal checks to the universities who are researching the reality of this epidemic (until pharma catches wind of them and shuts them down).

To date we have one voice–potentially two–on the IACC.  The goal of the Genome Project is to identify a genetic predisposition for autism (which has already been identified via biomarkers by  Dr. Ken Bock).  This project will help would-be parents whose potential children may be vulnerable to ASDs, terminate their fetuses.  It does not help children living with autism.  It does not help parents trying to earn a living and care for them.  It does not help our country mitigate the extraordinary financial cost of what is to come when the next generation of kids (who’ve received the experimental Hepatitis A) reach kindergarten age (this year!) and cannot be educated in conventional school settings.  Many, if not most of them, will still delight in Chicka Chicka Boom Boom and Barney when they are of age to take their first legal drink.

So, as summer trips are in full swing, and you question whether it was the right decision to take the road trip over the cruise,  I had to decide between visiting  out of state doctors our son had waited a year and a half for, or flying to Washington for a press conference aimed at exposing the IACC’s ineffectiveness. I tell ya, I sure as hell wish I was still in your shoes making your decisions instead of mine.  But, I’m not…and at the end of the day…I sincerely do not want you to end up like me. Do the research about vaccines and autism yourself–ahead of time! Please read the studies and healthcare legislation, yourself.  Read the MSD sheets you are given at the time of vaccination.  Question. Question. Question. Discover the truth beneath the lies so you can make truly  informed decisions for your child.  If you are a parent with an affected child but you are not yet involved please consider joining us at The Canary Party and The Thinking Moms’ Revolution.  We have a lot of work to do.

Lisa Joyce Goes is Vice President of Public Relations for The Thinking Moms’ Revolution www.thinkingmomsrevolution.com, a Contributing Editor for Age of Autism, and National Executive Board Member of the Canary Party www.canaryparty.org

 

Camels Milk Experiment

The shipment came today!  From http://www.camelmilkassociation.org/, I paid the $25 membership fee and ordered 9 pints of frozen camel’s milk.  I thawed the first bottle today, and this evening, Jackson and Sophie each had their first taste.  For Jackson, I put the milk into the oral syringe (my best friend), and squirted away.  He liked it, and kept opening willingly until he drank about 2 ounces in all.  I may try it in his sippy cup tomorrow.

   

When I asked Sophie if she wanted some camel’s milk, she said, “sure, but can I have some horsie milk too?”  For those of you who don’t know (almost 5 year old) Sophie, she is in love with horses.  Sophie liked the milk, especially since I warmed it and added some chocolate syrup.  She said it tasted like hot chocolate.

So far, so good with the camel’s milk.  Crossing my fingers I see some gains from this expensive beverage.  The milk itself is actually reasonably priced at $10 a pint…it’s the $40 shipping that gets ya.  Camel’s milk is one intervention on my list of things to try, so here it goes.  I’ll keep you posted….

 

Article: Merck Accused of Lying about Vaccine Effectiveness

Merck Accused of Lying about Vaccine Effectiveness

By Dr. Mercola

Things aren’t going so well lately in the litigation department for Merck, which stands accused of lying according to not just one, but two class-action lawsuits.

In the first case, two former Merck virologists accuse their former employer of overstating the effectiveness of the mumps vaccine in Merck’s combination MMR shot, which may have cost the US government hundreds of millions of dollars over the past decadei.

Merck’s mumps vaccine was originally licensed 45 years ago. Since the 1970s, it’s been part of the trivalent measles, mumps and rubella (MMR) vaccine, which is part of the recommended childhood vaccination schedule. The case, which was initially filed in 2010, was unsealed late last month. As reported by the Courthouse News Serviceii:

“… Stephen Krahling and Joan Wlochowski were Merck virologists who claim in their unsealed complaint that they “witnessed firsthand the improper testing and data falsification in which Merck engaged to artificially inflate the vaccine’s efficacy findings.”

… As the largest single purchaser of childhood vaccines (accounting for more than 50 percent of all vaccine purchases), the United States is by far the largest financial victim of Merck’s fraud,” according to the 2010 False Claims Act complaint.”

According to Nasdaq.comiii:

“Merck–which stressed that none of these allegations relate to the safety of its product–said the lawsuit is “completely without merit”, and that it plans to “vigorously defend itself.”

It’s quite interesting to note the chosen language in Merck’s rebuttal. It in no way addresses the issue of the vaccine’s effectiveness, which is the core issue of the lawsuit and the allegation by the two former Merck employees that the drug company purposefully used improper testing methods and falsified data to make the mumps vaccine appear highly effective when the opposite was true. Instead, Merck responds by saying that none of the lawsuit’s allegations relate to the safety of its products. Such evasive maneuvering certainly gives the appearance of an admission of guilt.

Second Lawsuit Filed

A mere week after the first case was unsealed, a federal antitrust class action lawsuit was filed by Chatom Primary Care. According to Courthouse News Serviceiv:

“Merck has known for a decade that its mumps vaccine is “far less effective” than it tells the government, and it falsified test results and sold millions of doses of “questionable efficacy,” flooding and monopolizing the market, a primary caregiver claims in a federal antitrust class action.

… Chatom says in its antitrust complaint that Merck falsely claims its mumps vaccine is 95 percent effective. That claim “deterred and excluded competing manufacturers,” who would enter the risky and expensive vaccine market only if they believed they could craft a better product…

Merck is the only manufacturer licensed by the FDA to sell the mumps vaccine in United States, and if it could not show that the vaccine was 95 percent effective, it risked losing its lucrative monopoly… That’s why Merck found it critically important to keep claiming such a high efficacy rate, the complaint states. And, Chatom claims, that’s why Merck went to great lengths, including “manipulating its test procedures and falsifying the test results,” to prop up the bogus figure, though it knew that the attenuated virus from which it created the vaccine had been altered over the years during the manufacturing process, and that the quality of the vaccine had degraded as a result.”

According to these two lawsuits, Merck began a sham testing program in the late 1990’s to hide the declining efficacy of the vaccine. The objective of the fraudulent trials was to “report efficacy of 95 percent or higher regardless of the vaccine’s true efficacy.” This program was initially referred to as “Protocol 007,” the Chatom claim states, and instead of testing the vaccine’s efficacy against a wild mumps virus, as is the norm, Merck used its own attenuated strain of the virus—the identical strain with which the children were being vaccinated!

That’s as brilliant as it is devious, and a perfect example of how medical research can be manipulated to achieve desired results. Suzanne Humphries recently wrote an excellent summary for GreenMedInfo.com, explaining in layman’s terms how the tests were manipulated (see Sources). The two virologists bringing the lawsuit against Merck claim they witnessed firsthand this deception and were asked to directly participate in it.

As reported by the Courthouse News Servicev:

“That “subverted” the purpose of the testing regime, “which was to measure the vaccine’s ability to provide protection against a disease-causing mumps virus that a child would actually face in real life. The end result of this deviation … was that Merck’s test overstated the vaccine’s effectiveness,” Chatom claims.

Merck also added animal antibodies to blood samples to achieve more favorable test results, though it knew that the human immune system would never produce such antibodies, and that the antibodies created a laboratory testing scenario that “did not in any way correspond to, correlate with, or represent real life … virus neutralization in vaccinated people,” according to the complaint.

Chatom claims that the falsification of test results occurred “with the knowledge, authority and approval of Merck’s senior management.”

Health versus Profits

Considering the extent of the allegations here, it is really shocking that the conventional media has not picked up on this story. About the only major media source reporting on it was Forbes Magazinevi

Interestingly, Forbes stated that this case gives “vaccine foes” new ammunition for their argument that drug companies are more interested in money than protecting consumers’ health. And rightfully so. While I do not advocate indiscriminately abstaining from all vaccines—I strongly advise and encourage exercising due diligence because vaccines can cause serious reactions that can have such devastating consequences. I believe in informed consent and the freedom to choose. There can be little doubt anymore that drug companies are in it for the profits, and virtually no price seems too high for them when it comes to protecting their profit-making.

I’ve written extensively about the many criminal and ethical wrongdoings of Big Pharma, and this is certainly not the first shocking allegation of pharmaceutical product manufacturing fraud that involves launching or keeping an inferior and/or dangerous product on the market.

While vaccine makers often claim there’s not a lot of profit to be had in vaccines, you have to remember that vaccine patents do not expire like drugs do. Vaccines continue to make profits as long as they’re in use, so risk of future losses due to competition is virtually nonexistent. So of course there’s profit in vaccines—especially once it’s placed on the childhood vaccination schedule because that guarantees the vaccine will have a stable, guaranteed annual market as a new cohort of babies are born every year. And of course vaccine makers will protect those huge profits—even, apparently, when it means putting children’s health at risk.

There is also the issue of immunity from prosecution. Merck lost many billions when their drug, Vioxx, killed tens of thousands of people and was taken off the market in 2004. If any of their vaccines killed similar numbers, or even more, they would not be held liable in damages for a single cent because Congress and the U.S. Supreme Court have completely shielded big drug companies like Merck from civil liability for vaccine injuries and deaths.

Also you need to remember that IF a vaccine is indeed highly effective, and avoiding the disease in question is worth the risk of the potential side effects from the vaccine, then it could be said that the benefits outweigh the risks. However, if the vaccine isineffective (and/or the disease doesn’t pose a great threat to begin with), then the vaccine may pose an unacceptable risk… At the very least, an ineffective vaccine will certainly skew the benefit to risk ratio toward greater risk, unless the vaccine is guaranteed harmless, and this, I’m afraid, cannot be said for the MMR.

This, I believe, is one of the most important points to remember in this discussion.

It’s not so much about determining whether or not the reduced effectiveness of this vaccine allowed the mumps outbreaks of 2006 and 2009 to occur, both of which occurred in highly vaccinated communities, but rather it’s a question of: “Have millions of children taken an unnecessary health risk by being injected with an ineffective vaccine?”

“Nothing Matters More than Safety,” Merck Says

“Nothing is more important to Merck than the safety and effectiveness of our vaccines and medicines and the people who use them,” Forbes quotes a Merck spokesmanvii.

Really?

Then WHY did they heavily promote Vioxx and keep it on the market until it had killed more than 60,000 people? I warned my readers that this pain killer might be a real killer for some people, five years before Merck made its $30 billion recall! Five years they let it go, and they undoubtedly would have kept it on the market longer had the lethal dangers not become so shockingly obvious to other scientists.

After Vioxx came the HPV vaccine Gardasil—perhaps the most unnecessary vaccine ever created, and likely one of the most dangerous to boot. Merck claims their main concern is safety… They must be speaking about some parallel Universe, because ever since Gardasil’s approval in 2006, reports of life-altering side effects and sudden deaths of otherwise healthy teenagers have stacked up into the thousands, yet Merck steadfastly refuses to acknowledge or address these health risks.

Gardasil appears to have one of the highest risk to benefit ratios of any vaccine on the market, and India even halted Merck’s post-licensing trials of the vaccine after four young participants died, yet Merck has the gall to claim that nothing is more important to them than safety. Give me a break… Actions speak louder than words, and Merck has a long paper trail of litigation highlighting the company’s questionable ethics.

Did Ineffective MMR Vaccine Promote Mumps Outbreaks?

In 2009, more than 1,000 people in New Jersey and New York came down with mumps. At the time, questions arose about the effectiveness of the vaccine as 77 percent of those sickened were vaccinated. No vaccine is ever 100 percent effective, of course, and according to the CDC, the MMR was estimated to be somewhere between 76-95 percent effective. In fact, the second MMR dose is necessary because up to 20 percent of individuals do not develop measles immunity after the first dose. The second dose is intended to provide a “second chance” for the vaccine to work, which is further evidence of this shot’s ineffectiveness.

A similar scenario occurred in 2006, when mumps infected more than 6,500 people in the US. Most of those cases also occurred among the vaccinated population, primarily among college students who had received two doses of MMR vaccine. About the only people who were truly immune to mumps were older Americans who had recovered from mumps as children, and therefore had received natural, lifelong immunity.

But just how and why did these outbreaks occur?

Typically, vaccine promoters will stress the importance of compliance with the vaccine schedule that requires multiple doses of a vaccine in order to create and maintain vaccine induced “herd immunity,” because a vaccine is never 100 percent effective. However, they never quite seem to be able to explain why the majority of outbreaks occur in areas that are thought to HAVE herd immunity status, i.e. where the majority of people are vaccinated and “should” therefore never get the disease.

What You Need to Know about “Herd Immunity”

The problem is that there is in fact such a thing as natural herd immunity. But what they’ve done is they’ve taken this natural phenomenon and assume that vaccines will work the same way. However, they do not, and the science clearly shows that there’s a big difference between naturally arising herd immunity and vaccine-induced herd immunity. To learn more, I urge you to listen to the following video, in which Barbara Loe Fisher, co-founder and president of the National Vaccine Information Center (NVIC), discusses the concept of herd immunity.

Download Interview Transcript

Barbara explains:

“The original concept of herd immunity is that when a population experiences the natural disease… natural immunity would be achieved – a robust, qualitatively superior natural herd immunity within the population, which would then protect other people from getting the disease in other age groups. It’s the way infectious diseases work…” Barbara explains. “But the vaccinologists have adopted this idea of vaccine induced herd immunity.

The problem with it is that all vaccines only confer temporary protection… Pertussis vaccine is one the best examples… Pertussis vaccines have been used for about 50 to 60 years, and the organism has started to evolve to become vaccine resistant. I think this is not something that’s really understood generally by the public: Vaccines do not confer the same type of immunity that natural exposure to the disease does.”

Vaccine professionals would like you to believe they are the same, but they’re qualitatively two entirely different types of immune responses.

“In most cases natural exposure to disease would give you a longer lasting, more robust, qualitatively superior immunity because it gives you both cell mediated immunity and humoral immunity,” Barbara explains. “Humoral is the antibody production. The way you measure vaccine-induced immunity is by how high the antibody titers are. (How many antibodies you have, basically.)

But the problem is, the cell mediated immunity is very important as well. Most vaccines evade cell mediated immunity and go straight for the antibodies, which is only one part of immunity. That’s been the big problem with the production of vaccines.”

Vaccines are designed to trick your body’s immune system into producing the antibodies needed to resist any future infection. However, your body is smarter than that. The artificial stimulation of your immune system produced by an attenuated or dead virus simply is not the same as your body engaging with and overcoming the real live virus.

According to Barbara:

“The fact that manmade vaccines cannot replicate the body’s natural experience with the disease is one of the key points of contention between those who insist that mankind cannot live without mass use of multiple vaccines and those who believe that mankind’s biological integrity will be severely compromised by their continued use.

… [I]s it better to protect children against infectious disease early in life through temporary immunity from a vaccine, or are they better off contracting certain contagious infections in childhood and attaining permanent immunity? Do vaccine complications ultimately cause more chronic illness and death than infectious diseases do? These questions essentially pit trust in human intervention against trust in nature and the natural order, which existed long before vaccines were created by man.”

More Censored News: MMR Vaccine Caused Autism, Italian Court Rules

These two lawsuits couldn’t come at a more precarious time for Merck, as the Italian Health Ministry has conceded the MMR vaccine caused autism in a now nine-year old boy. As a result, a court in Rimini, Italy recently awarded the family a 15-year annuity totaling 174,000 Euros (just under $220,000), plus reimbursement for court costs, ruling that the boy “has been damaged by irreversible complications due to vaccination (prophylaxis trivalent MMR).”

According to The Daily Mail, a British paperviii:

“Judge Lucio Ardigo, awarding compensation to the family… said it was ‘conclusively established’ that Valentino had suffered from an ‘autistic disorder associated with medium cognitive delay’ and his illness, as Dr Barboni stated, was linked to receiving the jab. Lawyer Mr Ventaloro explained yesterday: ‘This is very significant for Britain which uses, and has used, an MMR vaccine with the same components as the one given to Valentino. ‘It is wrong for governments and their health authorities to exert strong pressure on parents to take children for the MMR jab while ignoring that this vaccine can cause autism and linked conditions.’

Claudio Simion, a leading member of the lobby group Association for Freedom of Choice in Vaccination (Comilva), adds: ‘The Rimini judgment is vitally important for children everywhere. The numbers with autism are growing. It is a terrible thing that the authorities turn a blind eye to the connection between the MMR vaccination and this illness.'”

The UK newspaper, The Independentix, also reported on this groundbreaking case, stating that about 100 similar cases are now being examined by Italian lawyers, and more may be brought to court.

“Luca Ventaloro the family lawyer, said yesterday: “This is very significant for Britain which uses, and has used, an MMR vaccine with the same components as the one given to Valentino. It is wrong for governments and their health authorities to exert strong pressure on parents to take children for the MMR jab while ignoring that this vaccine can cause autism and linked conditions.” The number of autism cases has risen sharply since the 1970s, with one in 64 British children affected,” The Independent reported.

One can speculate about the reason why this news story was not picked up by a single US media outlet when it happened, but if I was a gambling man, I’d place my bet on protecting the vaccination program—not because it’s a marvelous panacea that promotes optimal health and longevity and can be defended with raw facts and first-class science, but because it’s a major profit center, both for the vaccine makers and for those whose pockets are lined with Big Pharma greenbacks in return for promoting and protecting the industry’s golden goose.

Even More Bad News: U.S. Varicella Vaccination Program a Total Flop

In related news, a recent review of the varicella (chickenpox) vaccination program in the U.S. concluded that the vaccine has:

  • Not proven to be cost-effective
  • Increased the incidence of shingles
  • Failed to provide long-term protection from the disease it targets―chicken pox―and
  • Is less effective than the natural immunity that existed in the general population before the vaccine

Here, vaccine efficacy was found to have declined well below 80 percent by of 2002. This damning news was published in May in the journal Vaccinex.

The information was gathered from a review of chicken pox and shingles statistics in the years since the vaccine was introduced. The researchers point out that although statistics showed shingles rates increased after the vaccine, “CDC authorities still claimed” that no increase had occurred. The authors also state that the CDC not only ignored the natural boost in immunity to the community that occurred with wild chickenpox, as opposed to the vaccine, but also ignored the “rare serious events following varicella vaccination” as well as the increasing rates of shingles among adults:

“In the prelicensure era, 95% of adults experienced natural chickenpox (usually as children)—these cases were usually benign and resulted in long-term immunity. Varicella vaccination is less effective than the natural immunity that existed in prevaccine communities. Universal varicella vaccination has not proven to be cost-effective as increased herpes zoster [shingles] morbidity has disproportionately offset cost savings associated with reductions in varicella disease. Universal varicella vaccination has failed to provide long-term protection from VZV disease.”

Get Informed Before You Vaccinate

Stories such as these underscore the importance to take control of your own health, and that of your children. It’s simply not wise to blindly depend on the information coming directly from the vaccine makers’ PR departments, or from federal health officials and agencies that are mired in conflicts of interest with industry…

No matter what vaccination choices you make for yourself or your family, there is a basic human right to be fully informed about all risks of medical interventions and pharmaceutical products, like vaccines, and have the freedom to refuse if you conclude the benefits do not outweigh the risks for you or your child.

Unfortunately, the business partnership between government health agencies and vaccine manufacturers is too close and is getting out of hand. There is a lot of discrimination against Americans, who want to be free to exercise their human right to informed consent when it comes to making voluntary decisions about which vaccines they and their children use.

We cannot allow that to continue.

It’s vitally important to know and exercise your legal rights and to understand your options when it comes to using vaccines and prescription drugs. For example, your doctor is legally obligated to provide you with the CDC Vaccine Information Statement (VIS) sheet and discuss the potential symptoms of side effects of the vaccination(s) you or your child receive BEFORE vaccination takes place. If someone giving a vaccine does not do this, it is a violation of federal law. Furthermore, the National Childhood Vaccine Injury Act of 1986 also requires doctors and other vaccine providers to:

  • Keep a permanent record of all vaccines given and the manufacturer’s name and lot number
  • Write down serious health problems, hospitalizations, injuries and deaths that occur after vaccination in the patient’s permanent medical record
  • File an official report of all serious health problems, hospitalizations, injuries and deaths following vaccination to the federal Vaccine Adverse Events Reporting System (VAERS)

If a vaccine provider fails to inform, record or report, it is a violation of federal law. It’s important to get all the facts before making your decision about vaccination; and to understand that you have the legal right to opt out of using a vaccine that you do not want you or your child to receive. At present, all 50 states allow a medical exemption to vaccination (medical exemptions must be approved by an M.D. or D.O.); 48 states allow a religious exemption to vaccination; and 18 states allow a personal, philosophical or conscientious belief exemption to vaccination.

However, vaccine exemptions are under attack in a number of states, and it’s in everyone’s best interest to protect the right to make informed, voluntary vaccination decisions.

What You Can Do to Make a Difference

While it seems “old-fashioned,” the only truly effective actions you can take to protect the right to informed consent to vaccination and expand your rights under the law to make voluntary vaccine choices, is to get personally involved with your state legislators and the leaders in your community.

THINK GLOBALLY, ACT LOCALLY.

Mass vaccination policies are made at the federal level but vaccine laws are made at the state level, and it is at the state level where your action to protect your vaccine choice rights will have the greatest impact.

Signing up to be a user of NVIC’s free online Advocacy Portal at www.NVICAdvocacy.org gives you access to practical, useful information to help you become an effective vaccine choice advocate in your own community. You will get real-time Action Alerts about what you can do if there are threats to vaccine exemptions in your state. With the click of a mouse or one touch on a Smartphone screen you will be put in touch with YOUR elected representatives so you can let them know how you feel and what you want them to do. Plus, when national vaccine issues come up, you will have all the information you need to make sure your voice is heard. So please, as your first step, sign up for the NVIC Advocacy Portal.

Right now, in California, the personal belief exemption is under attack by Pharma-funded medical trade organizations and public health officials trying to get a bill (AB 2109) passed that would require parents to get a medical doctor’s signature to file an exemption for personal religious and conscientious beliefs. Watch NVIC’s 90-second public service message and learn more about what you can do if you are a California resident.

Internet Resources

To learn more about vaccines, I encourage you to visit the following web pages on the National Vaccine Information Center (NVIC) website at www.NVIC.org:

  • NVIC Memorial for Vaccine Victims: View descriptions and photos of children and adults, who have suffered vaccine reactions, injuries and deaths. If you or your child experiences an adverse vaccine event, please consider posting and sharing your story here.
  • If You Vaccinate, Ask 8 Questions: Learn how to recognize vaccine reaction symptoms and prevent vaccine injuries.
  • Vaccine Freedom Wall: View or post descriptions of harassment by doctors or state officials for making independent vaccine choices.
  • Vaccine Ingredient Calculator (VIC): Find out just how much aluminum, mercury and other ingredients are in the vaccines your doctor is recommending for you or your child.
  • Vaccine Adverse Events Reporting System (VAERS) on MedAlerts. Search the government’s VAERS database to find out what kinds of vaccine reactions, injuries and deaths have been reported by patients and heath care workers giving vaccines.

Find a Doctor Who will Listen to Your Concerns

Last but not least, if your pediatrician or doctor refuses to provide medical care to you or your child unless you agree to get vaccines you don’t want, I strongly encourage you to have the courage to find another doctor. Harassment, intimidation, and refusal of medical care is becoming the modus operandi of the medical establishment in an effort to punish those patients and parents, who become truly educated about health and vaccination and want to make vaccine choices instead of being forced to follow risky one-size-fits-all vaccine policies.

If you are treated with disrespect or are harassed in any way by a doctor (or government official), do not engage in an unproductive argument. You may want to contact an attorney, your elected state representatives or local media, if you or your child are threatened.

That said, there is hope.

At least 15 percent of young doctors recently polled admit that they’re starting to adopt a more individualized approach to vaccinations in direct response to the vaccine safety concerns of parents. It is good news that there is a growing number of smart young doctors, who prefer to work as partners with parents in making personalized vaccine decisions for children, including delaying vaccinations or giving children fewer vaccines on the same day or continuing to provide medical care for those families, who decline use of one or more vaccines.

So take the time to locate and connect with a doctor who treats you with compassion and respect and is willing to work with you to do what is right for your child, and isn’t just competing for government incentives designed to increase vaccination rates at any cost.

References:


Switching It Up

Yesterday was our 3 hour Homeopathy visit.  I knew going into our meeting that I was ready to switch things up.  After 5 months of following the Lyme protocol, Jackson’s made minimal progress. All the meds, herbs and supplements I was pumping into him wasn’t sitting well with me (especially the antibiotics).  The biggest question floating in my head was/is, does Jackson even have Lyme Disease?  Do I?  Does Misha?  Were our tests false positives?  I still don’t know for sure either way.  I’m baffled.

The more I think about it, the more I think Jackson was damaged my vaccines, beginning with the flu shot I got when I was pregnant.  The Tylenol I gave Jackson before and after the vaccines didn’t help at all either.  THROW AWAY YOUR CHILDREN’S TYLENOL!  IT”S THE WORST THING YOU CAN GIVE YOUR CHILD.

Jackson, my dad, Misha and I sat in our Homeopath’s office for 3 hours learning even more about Homeopathy (if you haven’t read Amy Lansky’s book, The Impossible Cure: The Promise of Homeopathy, you should).  We also discussed every aspect of Jackson’s development, starting all the way back to the health of my and Misha’s grandparents, parents, prenatal health, until the present.

Today marks the day when I stop stressing about squirting, crushing, shaking, mixing, timing, medicines four times a day for Jackson.  You can’t imagine the relief I felt when I woke up this morning knowing I could be relaxed.  At 7am, I picked up smiley Jackson out of his crib, changed him and sat on the couch and just snuggled with him and his blankie watching Leapfrog’s Letter Factory (his favorite movie).  It was amazing knowing we didn’t have to follow a medicine schedule.

Our homeopath did give us two remedies to begin using with Jackson.  We are already on the right track with his Gluten Free, Casein Free, Sugar Free Diet, but he suggested other fresh her herbs and 3 supplements to begin using with Jackson.

I am going to pause on the blog for a couple weeks and focus all my positive, healing energy toward Jackson.  Unless I have something miraculous to report, I’ll update in a few weeks. Thank you all for your interest and support through the months.  It means so much to me that you all care so much about Jackson and our journey through the mysterious Autism/Lyme Disease/whatever it is.  There has been nothing easy about this process with Jackson, but I truly believe that everything we have done and are doing is getting us closer to finding the clues and answers we need to get the real Jackson to emerge out of his damaged body.

This entry was posted on July 13, 2012. 4 Comments

Camel’s Milk

Yet another treatment option I’m interested in.  After watching the video below from the Autism One conference in May, I went to the website, www.camelmilkassociation.org, and was about to order some.  It seems like a lot of families of autistic children have tried it with success.  Definitely on my laundry list of things to try…

http://www.regardingcaroline.com documents their first attempt at camel’s milk:
If you asked me 2 weeks ago if I’d be writing a blog about camel’s milk, I would’ve 
looked at you in much the same way as if you’d asked me if I was going to write a 
blog about giant flying potbelly pigs.
I mean really… Camel WHAT?  Who?  When? Where?  And for the Love of Pete, 
WHY???

First of all, Caroline has been dairy free for over 2 years.

And second, I’ll admit it, we’re milk snobs. Rice, almond, coconut, hemp, tried them
all and never finished a cardboard box of any of them.  I realize we’re in the 
minority and there are many who enjoy alternative milks, but for us their usefulness
has been limited to cooking.*

So, back to the flying pigs…

Milk from a camel was not even on my radar.  Until that is, I came across a blog 
called “You are what you eat!” and specifically the post Nutraceuticals for yeast,
bacteria, viruses and parasites.

If there ever was a biomedical love at first sight, I was smitten.  That post was spot 
on.  Perfect.  Something I planned to write one day myself… just as soon as I found
the time.  

And then there were the rest of the posts — so well organized and comprehensive, 
the more I read, the more I knew this mom, Jessica, was the real deal.  

After reading several entries, I came across one about Camel milk.  Now, if it were 
any other blog, on any other day, I doubt I would’ve given it a second glance.

But just like a lovestruck teenager, I was willing to follow Jessica wherever she was 
going to lead me.

And here’s what she said, “Camel milk does not contain beta-casein. Children
sensitive to casein can drink it safely. The milk is highly anti-viral and anti-bacterial.
The nanoglobulins (particulate in size compared to our immunoglobulins) pass
through cell walls instantly, very much like IVIG and because of the healing nature
of the camel’s immune system, it does wonders for those with autism, diabetes (it
contains insulin too), autoimmune diseases, Chron’s, and anything intestinal.”

Well that answered my why and who questions.  If you’re as intrigued as I was, 
you may also want to read Julie Matthew’s article at Nourishing Hope:  Camel Milk:
Healing or Hype?

For me, learning about something new that can help both PANDAS and autism is 
not an everyday occurrence.  Suddenly, the pigs were growing wings and I had 
come full circle.  Now all I needed to know was where could I get some and when 
she should drink it.

The where was easy enough.  The Camel Milk Association has a website and I 
ordered it right online.  Couldn’t have been easier.   As far as when, as with any 
new intervention, I planned to start slow.

Like a kid on Christmas

I was so excited for the milk to arrive I practically started counting down the hours.  
As soon as the package was delivered, I tore it open and started thawing the first 
bottle.  The ice cream maker was ready and I was not wasting any time.

As it thawed I wondered, worried really, about how it would taste.  A lot was riding 
on the taste.  If Caroline hated it, the whole ‘experiment’ was going to be immensely 
more difficult.  

Like a person (we won’t designate an age) taking their first sip of beer, I took a 
miniscule taste and….. DRUMROLL PLEASE….  Definitely do-able!  Only slightly 
salty (which I expected from reading other reviews) but otherwise very much like 
cow’s milk.  I found that a little vanilla masks any trace of saltiness perfectly.

So, without further fanfare, here’s what we’ve observed:

Day 1

6:00 pm — Caroline had approx. 2 oz, of Camel’s milk ice cream.  Within 5 minutes,
she was, for lack of a better phrase, “On fire.”

Talking more than ever, super engaged, had the barely-takes-her-eyes-off-you 
kind of eye contact.  And also stimming like you could not believe.  

She wanted to play a game she had previously refused to play for months and was 
glancing from Jay to I and back the entire game as if to say, “this is so cool!”  

She was using longer sentences and doing amazing things.  Right up until 
MIDNIGHT.  Ugh…  It was as if she was so stimulated, she couldn’t turn off her 
brain.  She was awake again at 3am for an hour.

Note:  the falling asleep problem is unusual, but the staying asleep problem is
typical ever since her PANDAS flare.

I’m tracking it closely since most parents report their children sleep better after a
period of time on the milk.

Day 2  — Thanksgiving Day

Woke at 9:30 am
More irritable than usual.  Won’t wear her dress, doesn’t want to do anything…

11:00 am — ate less than 1/2 oz. of a camel’s milk popsicle.  She acted the same 
as the day prior – amazing!

3:00 pm — ate the rest of the popsicle, approx 1 1/2 oz.  Same behavior.  
Sustained eye contact with Grandma, even did a sticker project (usually avoids 
stickers and art like the plague) and was very proud to show it off.

Did not fall asleep until 10:30 pm.  Awake at 5 am for an hour.

Day 3 — Today

Woke at 10:30 am.  (somewhat typical after she’s awake in the night)

Laying on sofa, completely vegetative for 45 minutes.  Not interested in talking or 
doing anything.

11:30 am — drank 1 oz.  Within 5 minutes, she was up, singing and dancing.  It was
a shocking transformation.  I was inspired to take a video of part of the 
performance.

3:00 pm – drank 1 oz.  Same behavior as all previous times with the addition of 
some (very rare in our house) spontaneous pretend play!

11:00 pm – she’s still awake….

The Verdict

It’s safe to say that camel’s milk has given us the quickest, most undeniable results 
of any biomedical intervention we’ve tried (and there have been a lot!).

We’ve had other quick successes (such as homeopathic belladonna and the first 
round of chelation) but the results were not as intense.   

I’m incredibly hopeful for what the future will bring.  Seeing these changes with 2 oz
of milk per day is something I certainly wasn’t expecting.

An important note:  Because we’ve had many negatives in the sleep department 
with every immune booster and/or modulator we’ve tried, I expected the issues and
plan to proceed very slowly.  And of course, I’ll update with our results.

Milk snobs turned camel aficionados

Although I never thought I’d say it, I’m astonished with the results and so very 
thankful to Jessica, Julie and the other moms who have publicized the gains they 
observed with camel’s milk.  If not for them, Caroline would not be benefiting from 
it’s almost miraculous healing properties.

And so, it seems only fitting to say that in this holiday season, perhaps the Three 
Wise Men didn’t come bearing 3 gifts after all.

Perhaps they came bearing 4.   

Gold, Frankincense, Myrrh and Camels.

See also…
UPDATE: Days 4-8

________________________________________________________________
(*)  For those of you also on the SCD, you’re right, there are technically no
commercially available “alternative” milks allowed on her diet.

Caroline, enjoying a camel’s milk popsicle on
Thanksgiving Day
To buy Camel milk online:
www.camelmilkassociation.org

The Canary Party

If you are a parent of an autistic child or care about an autistic child and don’t know about The Canary Party, let me introduce you…

http://www.thecanaryparty.com: The Canary Party is a movement created to stand up for the victims of medical injury, environmental toxins and industrial foods by restoring balance to our free and civil society and empowering consumers to make health and nutrition decisions that promote wellness.

The U.S. government has again failed at autism treatment and prevention, says a coalition of autism advocates representing tens of thousands of families.

“$1 billion has been wasted over six years, with nothing to show taxpayers but a doubled autism rate,” said Ginger Taylor of the Canary Party, a health advocacy group representing victims of man-made epidemics of chronic illness. “This public health disaster is devastating a generation of children, while government agencies and journalists have merely been ineffective, they have been obstructionists to the treatment and prevention of autism.”

Autism advocates will gather on Tuesday, July 10 starting at 8 a.m. in front of the L’Enfant Plaza Hotel, 408 L’Enfant Plaza SW in Washington, DC, to attend the Interagency Autism Coordinating Committee which is holding the first meeting of its new members. Several advocates plan to offer their protest over failed government policy during public comment. Four IACC members have publicly stated they do not believe autism should be prevented or medically treated.

Below are Mark Blaxill’s public comments to the IACC.

My name is Mark Blaxill. I am the co-author of the book, The Age of Autism and recently helped to launch a movement called The Canary Party, which was created to stand up for the victims of medical injury, environmental toxins and industrial foods. Unfortunately, we need to stand up for these victims, the proverbial “canaries in the coal mine,” because so many of them cannot speak for themselves. I am also the father of a 16 year old daughter diagnosed with autism. Thanks to biomedical interventions and therapy, Michaela is more verbal, social and flexible than most affected children, but sadly, she will not live independently. She most certainly does not have a capacity for self-advocacy, so (like most affected individuals) her parents must speak for her.

Unfortunately, the climate for parent advocates, never favorable in autism, has grown progressively more hostile. We have gone from being bad parents whose contempt for their infant children caused them to withdraw into autism, to raving lunatics who are a danger to the public health and whose opinions must be suppressed.

Why? Because the autism parent community refuses to stand down in offering inconvenient evidence to the makers of science and health policy. This evidence is simple. Before 1930, the rate of autism was effectively zero. Before 1990, autism in the United States was exceedingly rare, as low as 1 in 10,000. Three months ago, we learned that 1 in 88 children born in the year 2000 were autistic, 1 in 54 boys. The conclusion is inescapable: autism is manmade.

The health policy implications of this evidence are obvious. The only rational policy for autism would

  • Declare a public health emergency as our country did with poliomyelitis (a much smaller epidemic) and AIDS.
  • Urgently gather good numbers on the nature and extent of the epidemic
  • Objectively and without financial conflict, consider the short list of candidates for such an unusual and massive scourge
  • Collaborate closely with affected families to develop answers: prevention, treatments and resources throughout the lifespan.

Sadly, the policy response of the health agencies of our government has been precisely the opposite.

  • The NIH has funded research to concoct arguments that the crisis is an artifact of better diagnosing. Instead of mobilizing for the epidemic, science policy has promoted denial.
  • The CDC has organized surveillance to measure autism rates that are at least a decade old and trend evidence that starts just a few short years after the epidemic started. Instead of urgently gaining insight, health policy has promoted ignorance and delay.
  • The agencies of HHS act in unison to promote vaccination, a candidate exposure of great concern to parents, while agency leaders rotate out of their government positions to take lucrative jobs at pharmaceutical companies. Instead of objectivity, the investigation of cause has become fraught with conflicts
  • The IACC, newly reconstituted after the explosive 1 in 88 report, appears to have been recruited to rubber stamp this policy of epidemic denial. Instead of collaboration with parent leaders, public servants have turned their backs on us.

Autism parents spend a lot of time debating how the science and health policies surrounding autism have gotten to this place. Is it because autism is merely fodder to help recover and extend the massive research investment in the human genome? Is it because psychiatry grabbed hold of autism with Leo Kanner and refuses to release its grip? Is it because pediatricians are afraid to confront the idea that they may be harming more children than they are helping? Is it because the massive resources of the pharmaceutical industry have so tilted science and medicine in the direction of their financial goals that policy is now driven by money rather than reason? Is it because government officials are too busy worrying about their retirement, too afraid to rock the boat and confront inconvenient truths? Is it because the idea that there are human costs to some aspects of technical progress is too difficult for intelligent people to accept?

Or, more hopefully, is it because some people have simply made bad decisions that we have the freedom to unmake?

I don’t propose to answer all of these questions today. Instead I want to offer you all a challenge. Unmake your bad decisions. Treat autism as an emergency and not as something to celebrate. Approach the problem of prevention with the intellectual and moral urgency that an epidemic requires. Treat the canaries in the coalmine as signals of a crisis of public health not as a public relations problem. Offer respect and standing to those who speak for the injured, don’t handpick more convenient representatives to speak against us.

Most of all, I challenge you to do the right thing. Until you do, we will keep making you feel uncomfortable.

Take a look at the website, LIKE them on Facebook and support their quest to shed light on the autism epidemic.

Another video they just added:

From the Thinking Moms:

To Tell The Truth….

Saturday was the National Tell the Truth Day.  I was too busy taking care of my sick children to write a post about it over the weekend though.  I really wanted to because the thought of certain people who won’t tell the truth has nagged at me for some time.  I was prepared to write about this because the majority of Ronan’s struggle through this autism and vaccine injury journey has had me seeking the truth for several years – truth from medical doctors, educational administrators and in various mainstream media outlets and sources.

What have I found instead?

Vagueness.

Half truths.

And worse, silence.

Where’s the truth about our children and what happened to them.  What’s the real cause of the rising autism numbers?  Whose going to finally recognize the correlation so many parents have already made?  When is the honesty in reporting autism-related neglect and abuse ever going to truly start?  Where are our families going to go when we each run out of our own personal resources?  Who is going to give us any respect and reach out to help?  It sure didn’t happen on Tell the Truth Day.

Today was a good day to talk about the truth.  Today was the day that several groups in our community went face-to-face with those who should be talking to us about our children especially about what happened to them.  From an Age of Autism article posted last week, today is when “…the Interagency Autism Coordinating Committee will be holding the first meeting of the newly empaneled members.  The Autism community will be showing up to let them know that their actions have been wholly unsatisfactory.”   Why would we be asking the autism community be rallying together at such an important government-run meeting?  Well, again from that AofA post, “Six years and almost a billion dollars later, Insel has not only failed to produce even one medical intervention or recommendation to prevent or treat autism, the autism rate has DOUBLED on his watch.”

Six years + one billion dollars = ?

Not one medical intervention.

Not one medical recommendation.

Nothing notable to help prevent autism.

And nothing notable to treat it either.

I’ll tell you what did happen.

More children got sick.

More parents asked questions.

When more parents raised their concerns more official heads were turned.

They turned away from the very people in desperate need of help.

What do you think we in the autism community did about this?  We banded together.  Parent-run organizations and grassroots efforts sprung to life.  Even though we families sacrifice so much already, we gave more.  We had to, and in six years our community has grown louder.  We advocated because no one else would.  Just as the autism rates skyrocketed, so did our strength.  We didn’t want for it to grow, but it did.  It grew right before our eyes, and right before the eyes of the very people who were told to make it stop.

Or at least to make it better.

But, they didn’t.

Children continue to fall onto the spectrum.  New families are discovering that awful feeling of being forgotten.  Entire families suffer from neglect, rejection and isolation.  Our autism community took them in though, because there was nowhere else for them to go.  We had to because the autism rate doubled in six years.  And we were all forgotten.  Six years and no answers.  And no useful resources.  Six years of wasted time.  The clock continues to tick.

What did happen in six year’s time?

1 in 88 is now diagnosed.

1 in 54 boys are now affected.

1 in 22 children in New Jersey alone are dependent on a system that doesn’t seem to care.

Today is the day we wanted to do more than just listen.  We can’t continue to listen to what the paid spokespeople continue to promise.  Promises haven’t made perseveration, self-injurious behavior, non-verbal, diaper-dependent teenagers grow into law abiding, tax-paying, independent adult members of our society.  Promises haven’t brought interventions to curb the astronomical spending it takes to appropriately educate 1 in 88 children.  It sure didn’t provide treatment for those 1 in 54 boys.  And it hasn’t shrink those autism numbers for any of the states across the union!

One billion dollars spent how?

On our children?

No.

For our families?

Nope.

Or for the needs of our community?

Not yet.  And, at this rate, maybe never.

We want the truth.  We want it now.  We needed to hear it years ago.  We’ve waited long enough for it.  Today we were done waiting.  Today was the day we will demand it.  We stood up and demanded those answers.  Answers that have been kept hush hush, or dismissed or purposely pushed aside.

For those who couldn’t physically be with at the IACC meeting in Washington, D.C. today we’ll shared what we’ve learned from the meeting.  We sure won’t leave you in the dark as we have been left in the dark by others who had the chance to never let this happen.  Follow the updates from the groups who were able to attend and hear how our community did stand up and speak out:  Age of AutismAutism Action NetworkAutism OneThe Canary PartyThe Center for Personal RightsEBCALASafeMindsTalk About Curing Autism.

Know that many in our community went to the nation’s capital on a fact-finding mission to make sure our children’s needs were addressed.  Until we hear our issues are acknowledged, pray that our children and our families don’t have to wait any longer for the truth.

~Mamacita

If you want  to send a message directly to our state representatives about how the autism epidemic truly is a national crisis, you can click HERE.

If you would like to watch the IACC Meeting from July 10, 2012, click HERE

Jackson Knows and Loves His Mommy! (Jackson Update)

Jackson has known who I am for a while now, but he didn’t always care if I was around or not.  The last four weeks, Jackson has been without any therapy, just mommy therapy.  Now that he has started his 20 hours of ABA therapy a week, Jackson definitely notices and vocalizes discontent when I leave the room for him to play with his therapist.  I went quickly to Whole Foods this morning to stock up on blueberry coconut yogurt, and when I got back, Jackson was in the middle of his therapy session, playing in the living room.  He got up and ran toward me, becoming an instant hip magnet.  The therapist asked and encouraged him to go outside with her.  I knew he wanted to go outside, but he also didn’t want me to leave him, so he pushed me toward the door to go outside with him.  I went with him and paused right outside the door, and he continued to push me toward the swing.

Usually, I’m all for Jackson time and playing with him, but with the ABA therapy now, our case consultant thought it would be better that I escape to the back room so the therapist can have Jackson’s full attention without him being distracted by me, the preferred object.  I think I just noticed it crystal clear today how attached he is to me.  I take it as a good sign since all typically developing kids show attachment to a parent/both parents.

Another major change I’m noticing is Jackson’s eye contact.  I don’t know if it’s just with me or not, but when I’m engaging and interacting with him, he will be looking into my eyes.  Yesterday, he looked into my eyes so deeply that he poked my eye out of curiosity.  It wasn’t malicious, he was just exploring.  Seeing that my eyes closed when he poked them made him smile and we made a little game out of it.

After 4 hours of therapy yesterday, I put on the movie Ice Age: Dawn of the Dinosaurs.  I heard Jackson laugh at certain parts.  Whenever I heard Jackson laugh, I looked over, and woweeee….he was laughing at parts that were actually funny!  He wasn’t just laughing at nothing like he sometimes does.  He was laughing appropriately!

I think things are progressing, but very slowly with no major “aha’s!”  Slow and steady is the name of the game right now.

This entry was posted on July 10, 2012. 4 Comments

Homeopathy

This Autism/Lyme Disease road we’ve been traveling has expanded my beliefs and interests from just the traditional, allopathic medicine.  I’ve realized that conventional medical doctors don’t always have the time or desires to view Jackson as recoverable.  I’m now thinking outside the box, believing in treatments and ideas that I wouldn’t have taken the time to look at a year ago.

I am excited for this Thursday to come so we can explore Homeopathy with a well trained Homeopath.  Homeopathy first came to my attention from a blog I was reading (http://recoveringnicholas.com/).  The name, Pierre Fontaine (http://www.homeopathicservices.com) came up, and I watched several of his YouTube speeches.  I was still skeptical about a remedy having the ability to heal the body, but then I read Amy Lansky’s book, Impossible Cure:The Promise of Homeopathy:

From http://www.impossiblecure.com:

impossible cure

Impossible Cure: The Promise of Homeopathy provides an in-depth and exciting account of the history, philosophy, science, and experience of homeopathic medicine.

At the core of Impossible Cure is the amazing story of how Amy Lansky’s son was cured of autism with homeopathy. It also includes dozens of other testimonials of homeopathic cures for a variety of physical, mental, and emotional conditions.

Impossible Cure will serve as an invaluable guide to anyone interested in learning more about this intriguing form of health care.

After looking at a few websites of local Homeopaths, I decided on John Melnychuk, (www.paloaltohomeopathy.com).  He is the Homeopath who treated and helped recover Amy Lansky’s son.  On his website are testimonials from parents of Autistic children.  Our initial appointment is 2 1/2 hours consisting of a detailed interview.  Misha, my dad and Jackson will be there, giving John as much information as possible so he can understand Jackson as well as we do.  Beyond the initial interview, I’m not sure what will happen.  I’m optimistic and will report back.

Autism&Vaccines (again)

It’s so nice when experienced parents share their findings with us newbies to the Autism/biomed world.  For those of you who are still not sure about the link between vaccinations and autism, this blog post/research findings should clear all doubts.  New mothers and fathers, please read the research and make educated decisions for your precious babies.
http://www.regardingcaroline.com  (Bookmark this one and LIKE on Facebook!)
Vaccine Controversy: A PubMed Compilation: 15 to start with.
Its no secret…

When your child is diagnosed with autism, you want answers.  You want to
know what might have caused your family’s world to be turned upside down.
Plans for childhood forever altered, dreams rearranged and priorities
permanently shifted.
Some people however, believe that what we want is someone / something to
blame.  Something to pin our frustrations upon.  They say we go looking for a
connection.  A connection to vaccines.  A link that might assuage our pain.But this is simply not so.  Not in our in our house.  I went looking, setting out
not to find a link, rather to ease my worry. To reassure myself it could not be
the vaccines we gave to her.

You see, linking autism to vaccines would be blaming no one but ourselves.

We were the ones who took her to the office.  My husband the one who signed
the consent forms… It was us.

Finding a link to vaccines would place the blame squarely on our own
shoulders and is a much harder pill to swallow than a genetic condition.  After
all if it were genetics, we could simply blame our parents — and really, who
doesn’t like to blame their parents for their life’s challenges?

Try as I might though, the proof was there.  The more and more I read, the
more and more the scientists were backing up what we had seen firsthand.
The vaccines harmed our daughter.
Not only

could they impair her immune system, they DID.  They caused an
autoimmune reaction creating inflammation both in her fragile gut and
developing brain.  They triggered autism in not only her, but countless
children like her.

***Not sure why the links are not working.  Go to http://www.regardingcaroline.com for links to entire articles…

It’s all right there...

Explained for anyone who takes the time to read it.  Outlined in scientific
journals and on PubMed, a database accessing the MEDLINE references and
abstracts and maintained by the United States National Library of Medicine
(NLM) at the National Institutes of Health.
T

he answers. Staring at me in black and white.  The answers I hoped not to
find.  The blame, squarely on my shoulders for not doing the research
 before 
it was too late.
And that is why parents who have done the research are so vocal.  It’s not
about us.  It’s not about blame.  It’s about sparing you from making the same
mistakes we did.  It’s about your children and above all else, our desire to
protect them.


We are here for you… Read the links to the right and the fifteen PubMed links below.  See what you
think.  If you want more, there are many, many more.  You can search
PubMed for keywords and read until your eyes are bleary.  And it’s not just
about autism.



If you have a child with any autoimmune condition: asthma, allergies, pandas,
mitochondria disorder, adhd, diabetes, 
and so on…  sadly, you will find there
are links to vaccines for all types of autoimmune disorders.  
 Anecdotal no more.  You know where to look.  Check it out.  Pass it on.


Viral / Immune studies:Abnormal measles-mumps-rubella antibodies and CNS autoimmunity in
children with autism.

Autoimmunity to the central nervous system (CNS), especially to myelin basic
protein (MBP), may play a causal role in autism, a neurodevelopmental
disorder. Because many autistic children harbor elevated levels of measles
antibodies, we conducted a serological study of measles-mumps-rubella
(MMR) and MBP autoantibodies.
….over 90% of MMR antibody-positive autistic sera were also positive for MBP
autoantibodies, suggesting a strong association between MMR and CNS
autoimmunity in autism. Stemming from this evidence, we suggest that an
inappropriate antibody response to MMR, specifically the measles component
thereof, might be related to pathogenesis of autism.

Serological association of measles virus and human herpes virus-6
with brain auto-antibodies in autism.

This study is the first to report an association between virus serology and
brain autoantibody in autism; it supports the hypothesis that a virus-induced
autoimmune response may play a causal role in autism

Hypothesis: conjugate vaccines may predispose children to autism
spectrum disorders.

Conjugate vaccines fundamentally change the manner in which the immune
systems of infants and young children function by deviating their immune
responses to the targeted carbohydrate antigens from a state of hypo-
responsiveness to a robust B2 B cell mediated response.
This period of hypo-responsiveness to carbohydrate antigens coincides with
the intense myelination process in infants and young children, and conjugate
vaccines may have disrupted evolutionary forces that favored early brain
development over the need to protect infants and young children from
capsular bacteria.
.

Effects of diphtheria-tetanus-pertussis or tetanus vaccination on
allergies and allergy-related respiratory symptoms among children
and adolescents in the United States.

The odds of having a history of asthma was twice as great among vaccinated
subjects than among unvaccinated subjects  The odds of having had any
allergy-related respiratory symptom in the past 12 months was 63% greater
among vaccinated subjects than unvaccinated subjects  The associations
between vaccination and subsequent allergies and symptoms were greatest
among children aged 5 through 10 years.

Neurological Complications of Pertussis Immunization

Review is made of 107 cases of neurological complications of pertussis
inoculation reported in the literature. The early onset of neurological
symptoms was characteristic, with changes of consciousness and convulsions
as the most striking features. The question of aetiology is considered and
contraindications are discussed….as is the grave danger of further
inoculations when a previous one has produced any suggestion of a
neurological reaction.


Hepatitis B vaccination of male neonates and autism diagnosis, NHIS
1997-2002.

Findings suggest that U.S. male neonates vaccinated with the hepatitis B
vaccine prior to 1999 (from vaccination record) had a threefold higher risk for
parental report of autism diagnosis compared to boys not vaccinated as
neonates during that same time period. Nonwhite boys bore a greater risk.

Aluminum Studies:Do aluminum vaccine adjuvants contribute to the rising prevalence of
autism?

Our results show that: (i) children from countries with the highest ASD
prevalence appear to have the highest exposure to Al from vaccines; (ii) the
increase in exposure to Al adjuvants significantly correlates with the increase
in ASD prevalence in the United States observed over the last two decades;
and (iii) a significant correlation exists between the amounts of Al administered
to preschool children and the current prevalence of ASD in seven Western
countries, particularly at 3-4 months of age.

Aluminum hydroxide injections lead to motor deficits and motor
neuron degeneration.

…A second series of experiments was conducted on mice injected with six
doses of aluminum hydroxide. Behavioural analyses in these mice revealed
significant impairments in a number of motor functions as well as diminished
spatial memory capacity.

Aluminum Vaccine Adjuvants: Are they Safe?

Experimental research, clearly shows that aluminum adjuvants have a
potential to induce serious immunological disorders in humans. In particular,
aluminum in adjuvant form carries a risk for autoimmunity, long-term brain
inflammation and associated neurological complications and may thus have
profound and widespread adverse health consequences.  
click for entire study

Thimerosal studies:Integrating experimental (in vitro and in vivo) neurotoxicity studies of
low-dose thimerosal relevant to vaccines.

There is a need to interpret neurotoxic studies to help deal with uncertainties
surrounding pregnant mothers, newborns and young children who must
receive repeated doses of Thimerosal-containing vaccines (TCVs).
….Information extracted from studies indicates that: (a) activity of low doses of
Thimerosal against isolated human and animal brain cells was found in all
studies and is consistent with Hg neurotoxicity; (b) the neurotoxic effect of
ethylmercury has not been studied with co-occurring adjuvant-Al in TCVs; (c)
animal studies have shown that exposure to Thimerosal-Hg can lead to
accumulation of inorganic Hg in brain, and that (d) doses relevant to TCV
exposure possess the potential to affect human neuro-development.

Neurodevelopmental disorders following thimerosal-containing
childhood immunizations: a follow-up analysis.“The present study provides additional epidemiological evidence supporting
previous epidemiological, clinical and experimental evidence that
administration of thimerosal-containing vaccines in the United States resulted
in a significant number of children developing NDs.”

Neonatal administration of thimerosal causes persistent changes in
mu opioid receptors in the rat brain

“These data document that exposure to thimerosal during early postnatal life
produces lasting alterations in the densities of brain opioid receptors along
with other neuropathological changes, which may disturb brain development.”
.

Persistent behavioral impairments and alterations of brain dopamine
system after early postnatal administration of thimerosal in rats.“These data document that early postnatal THIM administration causes lasting
neurobehavioral impairments and neurochemical alterations in the brain,
dependent on dose and sex. If similar changes occur in THIM/mercurial-
exposed children, they could contribute do neurodevelopmental disorders.”

Maternal Thimerosal Exposure Results in Aberrant Cerebellar
Oxidative Stress, Thyroid Hormone Metabolism, and Motor Behavior
in Rat Pups; Sex- and Strain-Dependent Effects.

Thimerisol exposure also resulted in a significant increase in cerebellar levels
of the oxidative stress marker 3-nitrotyrosine…. This coincided with an
increased (47.0%) expression of a gene negatively regulated by T3,… Our
data thus demonstrate a negative neurodevelopmental impact of perinatal
thimerisol exposure.

Administration of thimerosal to infant rats increases overflow of
glutamate and aspartate in the prefrontal cortex: protective role of
dehydroepiandrosterone sulfate.

Thimerosal, a mercury-containing vaccine preservative, is a suspected factor
in the etiology of neurodevelopmental disorders. We previously showed that
its administration to infant rats causes behavioral, neurochemical and
neuropathological abnormalities similar to those present in autism.