Yet another treatment option I’m interested in. After watching the video below from the Autism One conference in May, I went to the website, www.camelmilkassociation.org, and was about to order some. It seems like a lot of families of autistic children have tried it with success. Definitely on my laundry list of things to try…
looked at you in much the same way as if you’d asked me if I was going to write a
blog about giant flying potbelly pigs.
First of all, Caroline has been dairy free for over 2 years.
And second, I’ll admit it, we’re milk snobs. Rice, almond, coconut, hemp, tried them
all and never finished a cardboard box of any of them. I realize we’re in the
minority and there are many who enjoy alternative milks, but for us their usefulness
has been limited to cooking.*
So, back to the flying pigs…
If there ever was a biomedical love at first sight, I was smitten. That post was spot
on. Perfect. Something I planned to write one day myself… just as soon as I found
And then there were the rest of the posts — so well organized and comprehensive,
the more I read, the more I knew this mom, Jessica, was the real deal.
After reading several entries, I came across one about Camel milk. Now, if it were
any other blog, on any other day, I doubt I would’ve given it a second glance.
But just like a lovestruck teenager, I was willing to follow Jessica wherever she was
going to lead me.
And here’s what she said, “Camel milk does not contain beta-casein. Children
sensitive to casein can drink it safely. The milk is highly anti-viral and anti-bacterial.
The nanoglobulins (particulate in size compared to our immunoglobulins) pass
through cell walls instantly, very much like IVIG and because of the healing nature
of the camel’s immune system, it does wonders for those with autism, diabetes (it
contains insulin too), autoimmune diseases, Chron’s, and anything intestinal.”
For me, learning about something new that can help both PANDAS and autism is
not an everyday occurrence. Suddenly, the pigs were growing wings and I had
come full circle. Now all I needed to know was where could I get some and when
she should drink it.
The where was easy enough. The Camel Milk Association has a website and I
ordered it right online. Couldn’t have been easier. As far as when, as with any
new intervention, I planned to start slow.
Like a kid on Christmas
I was so excited for the milk to arrive I practically started counting down the hours.
As soon as the package was delivered, I tore it open and started thawing the first
bottle. The ice cream maker was ready and I was not wasting any time.
As it thawed I wondered, worried really, about how it would taste. A lot was riding
on the taste. If Caroline hated it, the whole ‘experiment’ was going to be immensely
Like a person (we won’t designate an age) taking their first sip of beer, I took a
miniscule taste and….. DRUMROLL PLEASE…. Definitely do-able! Only slightly
salty (which I expected from reading other reviews) but otherwise very much like
cow’s milk. I found that a little vanilla masks any trace of saltiness perfectly.
So, without further fanfare, here’s what we’ve observed:
Talking more than ever, super engaged, had the barely-takes-her-eyes-off-you
kind of eye contact. And also stimming like you could not believe.
She wanted to play a game she had previously refused to play for months and was
glancing from Jay to I and back the entire game as if to say, “this is so cool!”
She was using longer sentences and doing amazing things. Right up until
MIDNIGHT. Ugh… It was as if she was so stimulated, she couldn’t turn off her
brain. She was awake again at 3am for an hour.
Note: the falling asleep problem is unusual, but the staying asleep problem is
typical ever since her PANDAS flare.
I’m tracking it closely since most parents report their children sleep better after a
period of time on the milk.
Day 2 — Thanksgiving Day
Woke at 9:30 am
More irritable than usual. Won’t wear her dress, doesn’t want to do anything…
11:00 am — ate less than 1/2 oz. of a camel’s milk popsicle. She acted the same
as the day prior – amazing!
3:00 pm — ate the rest of the popsicle, approx 1 1/2 oz. Same behavior.
Sustained eye contact with Grandma, even did a sticker project (usually avoids
stickers and art like the plague) and was very proud to show it off.
Did not fall asleep until 10:30 pm. Awake at 5 am for an hour.
Day 3 — Today
Woke at 10:30 am. (somewhat typical after she’s awake in the night)
Laying on sofa, completely vegetative for 45 minutes. Not interested in talking or
11:30 am — drank 1 oz. Within 5 minutes, she was up, singing and dancing. It was
a shocking transformation. I was inspired to take a video of part of the
3:00 pm – drank 1 oz. Same behavior as all previous times with the addition of
some (very rare in our house) spontaneous pretend play!
11:00 pm – she’s still awake….
It’s safe to say that camel’s milk has given us the quickest, most undeniable results
of any biomedical intervention we’ve tried (and there have been a lot!).
We’ve had other quick successes (such as homeopathic belladonna and the first
round of chelation) but the results were not as intense.
I’m incredibly hopeful for what the future will bring. Seeing these changes with 2 oz
of milk per day is something I certainly wasn’t expecting.
An important note: Because we’ve had many negatives in the sleep department
with every immune booster and/or modulator we’ve tried, I expected the issues and
plan to proceed very slowly. And of course, I’ll update with our results.
Milk snobs turned camel aficionados
Although I never thought I’d say it, I’m astonished with the results and so very
thankful to Jessica, Julie and the other moms who have publicized the gains they
observed with camel’s milk. If not for them, Caroline would not be benefiting from
it’s almost miraculous healing properties.
And so, it seems only fitting to say that in this holiday season, perhaps the Three
Wise Men didn’t come bearing 3 gifts after all.
Perhaps they came bearing 4.
Gold, Frankincense, Myrrh and Camels.
(*) For those of you also on the SCD, you’re right, there are technically no
commercially available “alternative” milks allowed on her diet.