If you are a parent of an autistic child or care about an autistic child and don’t know about The Canary Party, let me introduce you…
http://www.thecanaryparty.com: The Canary Party is a movement created to stand up for the victims of medical injury, environmental toxins and industrial foods by restoring balance to our free and civil society and empowering consumers to make health and nutrition decisions that promote wellness.
The U.S. government has again failed at autism treatment and prevention, says a coalition of autism advocates representing tens of thousands of families.
“$1 billion has been wasted over six years, with nothing to show taxpayers but a doubled autism rate,” said Ginger Taylor of the Canary Party, a health advocacy group representing victims of man-made epidemics of chronic illness. “This public health disaster is devastating a generation of children, while government agencies and journalists have merely been ineffective, they have been obstructionists to the treatment and prevention of autism.”
Autism advocates will gather on Tuesday, July 10 starting at 8 a.m. in front of the L’Enfant Plaza Hotel, 408 L’Enfant Plaza SW in Washington, DC, to attend the Interagency Autism Coordinating Committee which is holding the first meeting of its new members. Several advocates plan to offer their protest over failed government policy during public comment. Four IACC members have publicly stated they do not believe autism should be prevented or medically treated.
Below are Mark Blaxill’s public comments to the IACC.
My name is Mark Blaxill. I am the co-author of the book, The Age of Autism and recently helped to launch a movement called The Canary Party, which was created to stand up for the victims of medical injury, environmental toxins and industrial foods. Unfortunately, we need to stand up for these victims, the proverbial “canaries in the coal mine,” because so many of them cannot speak for themselves. I am also the father of a 16 year old daughter diagnosed with autism. Thanks to biomedical interventions and therapy, Michaela is more verbal, social and flexible than most affected children, but sadly, she will not live independently. She most certainly does not have a capacity for self-advocacy, so (like most affected individuals) her parents must speak for her.
Unfortunately, the climate for parent advocates, never favorable in autism, has grown progressively more hostile. We have gone from being bad parents whose contempt for their infant children caused them to withdraw into autism, to raving lunatics who are a danger to the public health and whose opinions must be suppressed.
Why? Because the autism parent community refuses to stand down in offering inconvenient evidence to the makers of science and health policy. This evidence is simple. Before 1930, the rate of autism was effectively zero. Before 1990, autism in the United States was exceedingly rare, as low as 1 in 10,000. Three months ago, we learned that 1 in 88 children born in the year 2000 were autistic, 1 in 54 boys. The conclusion is inescapable: autism is manmade.
The health policy implications of this evidence are obvious. The only rational policy for autism would
- Declare a public health emergency as our country did with poliomyelitis (a much smaller epidemic) and AIDS.
- Urgently gather good numbers on the nature and extent of the epidemic
- Objectively and without financial conflict, consider the short list of candidates for such an unusual and massive scourge
- Collaborate closely with affected families to develop answers: prevention, treatments and resources throughout the lifespan.
Sadly, the policy response of the health agencies of our government has been precisely the opposite.
- The NIH has funded research to concoct arguments that the crisis is an artifact of better diagnosing. Instead of mobilizing for the epidemic, science policy has promoted denial.
- The CDC has organized surveillance to measure autism rates that are at least a decade old and trend evidence that starts just a few short years after the epidemic started. Instead of urgently gaining insight, health policy has promoted ignorance and delay.
- The agencies of HHS act in unison to promote vaccination, a candidate exposure of great concern to parents, while agency leaders rotate out of their government positions to take lucrative jobs at pharmaceutical companies. Instead of objectivity, the investigation of cause has become fraught with conflicts
- The IACC, newly reconstituted after the explosive 1 in 88 report, appears to have been recruited to rubber stamp this policy of epidemic denial. Instead of collaboration with parent leaders, public servants have turned their backs on us.
Autism parents spend a lot of time debating how the science and health policies surrounding autism have gotten to this place. Is it because autism is merely fodder to help recover and extend the massive research investment in the human genome? Is it because psychiatry grabbed hold of autism with Leo Kanner and refuses to release its grip? Is it because pediatricians are afraid to confront the idea that they may be harming more children than they are helping? Is it because the massive resources of the pharmaceutical industry have so tilted science and medicine in the direction of their financial goals that policy is now driven by money rather than reason? Is it because government officials are too busy worrying about their retirement, too afraid to rock the boat and confront inconvenient truths? Is it because the idea that there are human costs to some aspects of technical progress is too difficult for intelligent people to accept?
Or, more hopefully, is it because some people have simply made bad decisions that we have the freedom to unmake?
I don’t propose to answer all of these questions today. Instead I want to offer you all a challenge. Unmake your bad decisions. Treat autism as an emergency and not as something to celebrate. Approach the problem of prevention with the intellectual and moral urgency that an epidemic requires. Treat the canaries in the coalmine as signals of a crisis of public health not as a public relations problem. Offer respect and standing to those who speak for the injured, don’t handpick more convenient representatives to speak against us.
Most of all, I challenge you to do the right thing. Until you do, we will keep making you feel uncomfortable.
Take a look at the website, LIKE them on Facebook and support their quest to shed light on the autism epidemic.
Another video they just added:
From the Thinking Moms:
To Tell The Truth….
Saturday was the National Tell the Truth Day. I was too busy taking care of my sick children to write a post about it over the weekend though. I really wanted to because the thought of certain people who won’t tell the truth has nagged at me for some time. I was prepared to write about this because the majority of Ronan’s struggle through this autism and vaccine injury journey has had me seeking the truth for several years – truth from medical doctors, educational administrators and in various mainstream media outlets and sources.
What have I found instead?
And worse, silence.
Where’s the truth about our children and what happened to them. What’s the real cause of the rising autism numbers? Whose going to finally recognize the correlation so many parents have already made? When is the honesty in reporting autism-related neglect and abuse ever going to truly start? Where are our families going to go when we each run out of our own personal resources? Who is going to give us any respect and reach out to help? It sure didn’t happen on Tell the Truth Day.
Today was a good day to talk about the truth. Today was the day that several groups in our community went face-to-face with those who should be talking to us about our children especially about what happened to them. From an Age of Autism article posted last week, today is when “…the Interagency Autism Coordinating Committee will be holding the first meeting of the newly empaneled members. The Autism community will be showing up to let them know that their actions have been wholly unsatisfactory.” Why would we be asking the autism community be rallying together at such an important government-run meeting? Well, again from that AofA post, “Six years and almost a billion dollars later, Insel has not only failed to produce even one medical intervention or recommendation to prevent or treat autism, the autism rate has DOUBLED on his watch.”
Six years + one billion dollars = ?
Not one medical intervention.
Not one medical recommendation.
Nothing notable to help prevent autism.
And nothing notable to treat it either.
I’ll tell you what did happen.
More children got sick.
More parents asked questions.
When more parents raised their concerns more official heads were turned.
They turned away from the very people in desperate need of help.
What do you think we in the autism community did about this? We banded together. Parent-run organizations and grassroots efforts sprung to life. Even though we families sacrifice so much already, we gave more. We had to, and in six years our community has grown louder. We advocated because no one else would. Just as the autism rates skyrocketed, so did our strength. We didn’t want for it to grow, but it did. It grew right before our eyes, and right before the eyes of the very people who were told to make it stop.
Or at least to make it better.
But, they didn’t.
Children continue to fall onto the spectrum. New families are discovering that awful feeling of being forgotten. Entire families suffer from neglect, rejection and isolation. Our autism community took them in though, because there was nowhere else for them to go. We had to because the autism rate doubled in six years. And we were all forgotten. Six years and no answers. And no useful resources. Six years of wasted time. The clock continues to tick.
What did happen in six year’s time?
1 in 88 is now diagnosed.
1 in 54 boys are now affected.
1 in 22 children in New Jersey alone are dependent on a system that doesn’t seem to care.
Today is the day we wanted to do more than just listen. We can’t continue to listen to what the paid spokespeople continue to promise. Promises haven’t made perseveration, self-injurious behavior, non-verbal, diaper-dependent teenagers grow into law abiding, tax-paying, independent adult members of our society. Promises haven’t brought interventions to curb the astronomical spending it takes to appropriately educate 1 in 88 children. It sure didn’t provide treatment for those 1 in 54 boys. And it hasn’t shrink those autism numbers for any of the states across the union!
One billion dollars spent how?
On our children?
For our families?
Or for the needs of our community?
Not yet. And, at this rate, maybe never.
We want the truth. We want it now. We needed to hear it years ago. We’ve waited long enough for it. Today we were done waiting. Today was the day we will demand it. We stood up and demanded those answers. Answers that have been kept hush hush, or dismissed or purposely pushed aside.
For those who couldn’t physically be with at the IACC meeting in Washington, D.C. today we’ll shared what we’ve learned from the meeting. We sure won’t leave you in the dark as we have been left in the dark by others who had the chance to never let this happen. Follow the updates from the groups who were able to attend and hear how our community did stand up and speak out: Age of Autism, Autism Action Network, Autism One, The Canary Party, The Center for Personal Rights, EBCALA, SafeMinds, Talk About Curing Autism.
Know that many in our community went to the nation’s capital on a fact-finding mission to make sure our children’s needs were addressed. Until we hear our issues are acknowledged, pray that our children and our families don’t have to wait any longer for the truth.
If you want to send a message directly to our state representatives about how the autism epidemic truly is a national crisis, you can click HERE.
If you would like to watch the IACC Meeting from July 10, 2012, click HERE