Archive | June 2012

Ethan’s Recovery Video

This is the video that got me started on the Biomed road.  I remember watching it about 6 months ago, seeing almost exact similarities between Jackson and Ethan.  I wanted to share the video again.  Ethan was on a strict diet, and was on anti-viral, anti-fungal meds, B12 shots (among other interventions and supplements I’m sure).

Copy, paste, and watch!

http://recoveryvideos.com/video/ethanweb.mov

You can also visit Stan Kurtz’ websites http://www.recoveryvideos.com and http://www.stankurtz.com

Viral Treatment

I’m starting to research viral treatment and how other families dealt with their children on Valtrex/anti-virals.  A question I have for our doctor next time I see him is about the dosage.  Jackson was prescribed 250mg a day (half of a 500mg capsule).  Is it best to split the 250mg dose in half so that he gets two smaller doses, one in the morning, one in the evening?   Here goes my Google University for viral treatment!

http://savingsavannah.org/category/viral-treatment/  :

Posted on June 11, 2012

Viral tegument

It’s reported that about 1/3 of ASD kids respond to viral treatment. It is recommended to put off viral treatment until you have done around 50 rounds of chelation.

The reason to wait?  Viruses are not really alive, so they don’t die. Viruses are kept in balance within the body by an immune system that is somewhat intact. It’s well documented that metals will impact the immune system to the point where viruses will proliferate and the immune system will not be able to balance or control effectively. I’ve seen lots of people try to treat viruses before the year of chelation and most were not successful. It usually creates a lot of discomfort in children when you attempt to treat the viruses, so best to wait until the Mercury load comes down.

So, here we are at about round 50, getting a little bored with chelation. Let’s face it, it’s not exciting like it was in the beginning when we were oohing and aahing over all the improvements.

Let me say up front here, to not do as we did and attempt viral treatment in the winter (never occurred to me that this wasn’t a good idea). There are all kinds of nasty viruses around in the winter and you never quite know for certain if what you are seeing is the result of your viral treatment or some random virus that is circulating around your community.

If you wait until June, when there are much fewer viruses hanging around, you are  more certain what the viral treatment is actually doing. We first tried Valtrex, being unaware of the advantages of natural antivirals, the main one being that natural antivirals target many viruses, Valtrex only a few. The Valtrex (only 1/3 of the tablet, with the blue coloring washed off) produced complaints from her that there “were knives” in her stomach and she didn’t eat a single thing all day. She was, as I have mentioned a hundred times, anorexic, so this was a deal for me with Valtrex.

So, we started giving Virastop along with a few other natural antivirals and we noticed that she was certainly more motivated and independent. Every single natural antiviral we used produced these same improvements. She also had a number of viruses where for the first time, she spiked very high fevers, 106 with Ibuprofen.

You’ve no doubt heard of ASD kids who are runners, who will bolt at any opportunity, we had the opposite kind of ASD kid. The one who was stuck to your side, who rarely left it, who would play with toys sitting right beside you on the couch and it was enough to sit beside you, she had to be touching you.

With Virastop and the other natural antivirals; the art supplies would come out and she would produce her artwork while sitting at the kitchen table a whole TEN whole feet away from me, miraculous. Motivation and independence were qualities that we were lacking and very much needed.

You can read all about viruses and the Virastop Protocol here. I can say that we never did this high dose protocol. I just didn’t like the idea of giving over 20 Virastop capsules per day, seemed excessive to me.

English: Simplistic overview of the main viral...We would keep her on the natural antivirals for 3-4 months and then stop to see if the improvements held. It took over a year of treatment with natural antivirals for the improvements to hold.

During the year of antiviral treatments we used many other natural antivirals with the Virastop. Elderberry brought out 10 quarter size chicken pox lesions on her right shoulder blade, complete with blisters and intense itching. She did have the Varicella vax and when I took her to the ped who said….If I hadn’t vaxxed her myself I’d swear those where chicken pox. Hmmmm.

Of course we continued to chelate the entire time we did the antiviral protocols, low/frequent dose chelation, which is safe and effective. Still with us was her anorexia, fine motor issues, inattention when yeast flared and some social issues.

For more detailed information about how to treat viral issues, please see the book Fight Autism and Win: Biomedical Therapies That Actually Work!”

The Good and The Bad-Viral Protocol Part Two

Posted on June 19, 2012

English: Transfer factors and Th1 (cell-mediat...

We have skipped around just a bit, but for those following along, we’re at round 73. This takes us up to “the” June before Kindergarten; we had some pretty big decisions to make about whether to send her to school or homeschool in a short 9 weeks.

Cognitively she was solid, language was spectacular and attention was as good as I had ever seen. Gross motor skills were age appropriate. She was still anorexic and the nervous joke around our house was that someone was going to have to go to school at lunch time and feed her.

Social kept improving all along but we still had that little bit of discomfort when around children her own age,  Fine motor was okay, but certainly not what I would have considered age appropriate, although I found later she was within “the range” of age appropriate.  So, a mixed bag.  Most of our requisite kindergarten skills were there, but not complete enough to make me comfortable and I didn’t want to send her too early and set her up to fail. In particular, the social was the most concerning to me.

We are still on antivirals at this point and getting improvements but everytime we tried to take her off the natural antivirals we would lose the gains. I surmised that adding an immune modulator might help us and we chose Transfer Factor. Transfer Factor is an immune messengers, found in mother’s milk, transferred from mother to baby to educate the immune system. You’ve heard about the enormous benefits of breastfeeding and it is largely due to these “transfer factors”.

Transfer Factors, the product, work much the same way. You can read about and order Trasnfer Factor here.They even have a chewable product now that was not available when we were using it but the taste of the powder is not bad at all and can be mixed with cold, soft food such as apple/pearsauce or yoghurt. They also have a Transfer Factor (Transfer Factor Plus) with Cordycepsmushrooms but I was always concerned that the more ingredients that were in a product, the higher chance there was for a reaction.

I do have to stop and report that I never had, nor do I now have any other relationship with the company that manufacturers or sells Transfer Factor, other than that of any customer buying the product. There is a representative I spoke to at the company, Suzette Lawrence, who was very helpful in answering my questions.

A week after putting Savannah on Transfer Factor (only 2 capsules per day) we got two very nice improvements. The first with yeast, that is the yeast left, was gone. Many parents report yeast gets a lot easier to handle after 50 rounds of chelation, we had not noticed that here. Transfer Factor made the yeast GONE, not just easier to handle and what a welcome relief that was. Only parents of children with severe yeast can truly understand how wonderful this event was.

A week after being placed on Transfer Factor I had enrolled Savannah in a very relaxed, social-only, preschool/daycare for a few hours a couple of days a week. We were moving into a new school district in October and I thought maybe she could meet some children who she would start Kindergarten with if we did decide to send her to school as this preschool was in our new district.

The following is a little unbelievable but it is a true report: I went to pick Savannah up a week later after she started Transfer Factor and got there 20 minutes early. There were some kids coming on the playground at the time I pulled in. It was not time for Savannah’s regular playground time but I decided just to sit outside and watch the children.

As I watched the children, I became focused on one little girl who was in the middle of all the kids and who seemed to be in charge of directing all the activity. I saw several children calling to her and asking direction and where this little girl went, they followed. Oh, how I envied the social skills of this little girl and how I ached for Savannah to be so in charge and at ease with children her own age, just like this little girl.

I must have watched this interaction between this little girl and the other children for another five minutes when it dawned on me that this little girl and Savannah had on the same little jean skirt. And then I noticed that this little girl also had on the same color shirt as Savannah. I have to tell you at this point that I am very nearsighted, didn’t have my glasses, but did remember that I had a pair of binoculars in the glove box of the car.

To say I whipped the binoculars out of my glove box in a nano second is not an exaggeration. And what I discovered much to my surprise was the little girl I had spent almost 15 minutes admiring her self confidence, leadership and ease among the children WAS Savannah. I really wish someone had been able to capture the look on my face.

I must have set there for another hour just watching, I was way late picking her up but they were keeping the children on the playground and I wasn’t going to miss a minute. I can also say that although I thought or feared that these new found social skills might be fleeting, that did turn out to be the day that her social skills came on board and never faltered at all, ever. I’ve often thought I should write a book called “Things That Would Only Happen To Me” and  I would include this story for certain.

Was Savannah’s new found social ease due to the Transfer Factor?  I will never know for sure, I don’t know a whole lot of other children whose parents reported this upswing of social skills with Transfer Factor, but a few did. I will never know with absolute certainty but I  will always think that the Transfer Factor had something to do with it, maybe in conjunction with chelation?

As the weeks went by and the social gains held it became apparent that Savannah would start to school as social issues were really my last “big” area of concern. Her appetite had picked up a little, her fine motor skills were coming along, everything was falling neatly into place for that all important first year of school.

Only Biomed parents will appreciate and understand what happened next. I turned around a month later and notice Savannah’s attention was OFF. Really? Wth? How could this be? so many times you fix one or two things with our kids and you get another problem but this was a return of an issue that hadn’t been an issue for sometime.

My mother noticed she seemed a little “tipsy” even but there was no yeast. The other thing that can cause this drunk-like behavior with slightly slurred words was high ammonia. Other symptoms of high ammonia can be; excessive sleepiness, confusion or hand tremors.  We called for a blood test for high ammonia and yes, she did have high ammonia. The Dr, who was a Dan! actually said the levels were high but within the norm so recommended no treatment.

Again, my mother said no, this is not normal. Through research we learned that high ammonia levels can lead to portosystemic encephalopathy with resulting damage to the liver. Alpha Ketoglutarate (Or AKG) was the preferred treatment to “chelate” out the ammonia. The protocol for this was (1) 300 mg capsule of AKG per meal for 4 months. Sure enough, within 4 days of giving the AKG, Savannah’s attention was back to normal.

Autism and high ammonia are related. Some have postulated that high ammonia is a methylation issue and it could well be. I will fully admit at this point that although she looked much like every other typical child, she was far from healthy. We were not done treating or chelating. She only had this ammonia issue once, we used the AKG for four months and never saw the issue again.

You should also know that if you get your child tested for high blood ammonia, the sample has to be prepared according to specific instructions; namely the sample has to be put on ice IMMEDIATELY because ammonia will naturally accumulate in any blood sample kept at room temperature causing a false positive.

If the lab technician or phlebotomist doesn’t appear with a container of ice when they come to take your child’s blood, ask them nicely to get one. If they get agitated or say they are going to put it on ice as soon as they leave you, this is not good enough. Ask for the manager of the lab or the patients’ relations office or some other person in charge and nicely explain that you want the sample put on ice IMMEDIATELY.

Even if you are nice and calm, this will sometimes make the phlebotomist a little perturbed. The choice between the lab  technician getting a little angry and my child getting accurate results from a test so they can get well? Not a choice for me that I have to spend anytime thinking over. There are a few lab technicians in the area I live in that aren’t too happy with me but again, my child is well so I do not lose any sleep over this fact.

Tune in next time to find out what happens when you put a very nearly, but newly recovered ASD child into a regular Kindergarten without an aide or without disclosing anything to the school. Boy, do I know how to live on the edge, or what? 

 

Starting Valtrex…Anti Viral, Here We Come!

Today we also met with our LLMD.  We went into the meeting (with Jackson), uneasy about the fact that we’ve seen so little (if any) progress with Jackson in these last 4 months.  Our LLMD had hoped to see some more progress out of Jackson, but reminded us how much we’re dealing with in Jackson’s case: parasites (just about gone), Lyme (making huge progress), PANDAS, mold (possibly?), methylation cycle issues, Marcons, and now, he’s found a viral component.  He made me feel a whole lot better that we are treating what needs to be treated and to steer the course.

For the virus, he’s prescribed Valtrex.  Valtrex is an anti-viral…THE anti-viral that Stan Kurtz (http://stankurtz.com/) used with his son, Ethan’s, recovery.  I’m wondering if Valtrex could be a key piece of the puzzle we are missing in helping Jackson.  In Ethan’s case, it took about 20 horrible days of regression to finally see some gains and progress…nonverbal to verbal!  I’m a little nervous to start the Valtrex since things could get worse, but excited about the possibilities that Valtrex can bring.  So far, with all the supplements, medications and everything that’s gone into Jackson’s body, he hasn’t had any major negative herx reactions.  Will Jackson tolerate Valtrex?  Will he go through some poop-smearing days as Ethan did?  We will see!

Here’s what I’ve read about Valtrex from: http://gryffinstail.wordpress.com/tag/antivirals-101/   :

Die-off sucks.  Yes, you probably already know but really, it can suck more with antivirals.

Each child reacts differently and some will get little to no die-off and others will think their child has been possessed by the body snatchers.

I’m sure you are on the edge of your seat, waiting for me to explain what to look for when you start.  You’re in luck.

low grade fever
increased stimming
rash (sometimes it travels)
hyperactivity
aggression
whininess
discomfort
increased OCD/anxiety
canker sores/cold sores
fatigue
headache/audio sensitivity

That’s all I can think of off the top of my head.

And that’s just from the antiviral.  But again, severity is going to depend on the child.  In my son, we only saw the low-grade fever, hyperactivity and his aggression was only raised slightly.  But the whining!  Good Lord, help me.  It was a nightmare.  It really made the die-off seem much worse than it actually was. When you wait so long to hear your child speak, you’re willing to listen to anything and never ask them to stop talking.  This was tested in my house.  Turns out, it’s not always true.  You’re thankful, absolutely.  But it wasn’t too far of a leap for me to go from “please talk” to “please stop whining!”

Thank goodness there ways to help get you through (and I don’t mean that appletini after the kids are in bed).  A big part of that is to only start the antiviral/antifungal protocol 1 at a time.  You start either the antiviral or the antifungal first, and then you add the other a month later.  If you start the antifungal first, you might be able to get away with starting the antiviral 2 weeks later but not vice versa.  Starting them both at the same time will almost always just compound the die-off (plus you want to know what’s doing what.  Don’t forget to take copious notes!  This is the perfect time to learn what your child’s yeast and viral symptoms look like because those will go through the roof during die-off or they’ll disappear.  Either way, you can now trace those behaviors back to their root).  Also, when you start, start at half-dose for a week to ease into it.  It’ll help smooth the die-off so it’s not so harsh.  And just so there’s no confusion, when you start the antiviral, start at half dose and when you add the antifungal, start it at half-dose.  Go to full after a week.  So if you are Rxed 500 mg/3x a day of Valtrex, start at 250 mg 3x/day for a week, then go to 500 mg.  Discuss this with your doctor, of course, don’t take my word for it. I don’t have any medical acronyms after my name.

Activated charcoal.  There is some debate as to whether you should go with 1 hour after any supplements and 1 hour before any supplements or 2 before and after.  I’d just go with 2 just to be certain.  But that means a total of at least a 4 hour window where you don’t give any supplements/medicine (charcoal will absorb it).

Motrin.  A lot of the die off symptoms are simply caused from discomfort.  Aggression, hyperactivity, those types of things.  Like I said, die-off can suck.  How many of you out there have taken an antifungal and felt just awful for the first few days it was working (and I’m going to go out on a limb here and say there are probably more females that have to take it than men)?  Well, the same thing happens to your kids.

Water.  Antivirals clear through the kidneys.  Drink lots of water and that should help with the headaches.

Be patient.  Die-off on the antiviral can take up to a month.  I’ve even heard of a few that have gone longer.  During this time, you may see gains through the die-off.  Most do but a few don’t see gains until die-off is completely gone.  Die-off from an antifungal usually only lasts a week or two.

Probiotic during the antifungal.  Some can have loose stools or constipation from the antifungal.  This usually rectifies itself after die-off is over but probiotics can help during.  But you’re probably already giving them anyway.

Be observant.  Watch your child like a hawk because you don’t want to blow things off calling them die-off symptoms when it could be a very real reaction to the drug (I’ve not actually heard of this happening but I can’t imagine it’s not impossible – I had a severe reaction to Singulair and just about went off the deep end).  Don’t be afraid to call your doctor, that’s what s/he is there for, so call if you feel you should.  Trust your gut.  If you think it’s not die-off (or even if you think it mightnot be die-off), call your doc.

I will surely write daily Valtrex updates.

Jackson’s Life Sentence is NOT Autism

Grrrrrrr.  So FRUSTRATING!  We went today to see a local Pediatric Neurologist.  Our appointment lasted about half an hour, and in that thirty minutes, the take home message was, “we’ll do some bloodwork to look for chromosomal abnormalities, as well as a 30 minute sleep EEG, but I’m pretty sure those will come back clean, so keep doing your ABA and behavioral therapies.  Jackson’s brain is wired differently, and he is severely Autistic.”  It makes me so angry that doctors can speak to parents of Autistic kids and give them no hope.  Yes, we have a lot of work to do with Jackson, but Autism is not his life sentence.  Yes, behavioral therapy is wonderful, but it is not the only answer.  Jackson has MEDICAL problems, and we need to deal within before he can heal and thrive.

We took the neurologist Jackson’s stacks of testing, his list of supplements and medications.  He browsed through them for about a minute and handed them back, not saying much about them, other than some people decide to try this “alternative” route.  We told him about Jackson’s GFCFSF, his friendly, non-tantrum nature, his amazing sleeping and eating habits, all the many doctors, and other professionals we’ve seen.  I brought up the fact that I didn’t think 30 minutes was enough for a sleep study…what if no seizures are detected in that short time…isn’t a longer sleep study better?  He agreed yes, a longer sleep study is better, but the standard is 30 minutes, so Jackson will do 30 minutes.  He continued, that if we need to retest, we can.  Whaaaat?  If I’m sleep depriving Jackson and he sleeps for 2 hours, why not continue the sleep study for the full 2 hours.  He agreed with the statistic that 30% of Autistic kids suffer from mini seizures, but he was pretty confident Jackson is fine.  Whaaaat?  Seriously?  As Sophie would say, “are you kidding me?”

This pediatric neurologist treats autism by treating the symptoms.  For example, to mask the ADHD-like hyperactivity of some autistic children, he prescribes meds instead of delving into the root of the problem.  Red flag!  I think you can tell, I won’t be returning to this pediatric neurologist.   The key to unlocking Jackson is out there, and if he’s not willing to delve into the underlying issues, I will, or I’ll find the right doctors that can help me.

I am excited about our July 16th appointment with another Pediatric Neurologist in Sacramento, Dr. Chandra.  http://www.checksutterfirst.org/neuro/autism/

I’m hoping here, at the Autism Medical Treatment Center at the Sutter Neuroscience Institute, that we’ll get more compassion, knowledge, and the drive for understanding Jackson’s brain and what may be going on inside that we don’t know about.

To all you parents out there that speak to your pediatricians and other medical professions, take what they say with a grain of salt.  They are not all-knowing beings with all the answers (as I used to think MDs were).  Autism is treatable, reversible and worth fighting.  All the “alternative biomed doctors” should not be completely written off.  Biomed has worked on other children and will work for Jackson.  We are staying the path, staying focused, finding the right treatments, and will keep going as long as it takes.

Autism Medical Treatment Center
Sutter Neuroscience Institute

 

As the only Clinical Autism Treatment Program in the Sacramento Region, and one of the only programs in California, the Sutter Autism Treat Center and Sutter Transition for Autism and Neurodevelopmental Disorders Clinic (STAND) takes great pride in treating an underserved population with compassion and clinical excellence.

We offer the latest in clinical diagnostic techniques and also medical and non-medical treatment recommendations that can offer relief for many symptoms of autism and autism spectrum disorders.

Our vision

To provide comprehensive care to patients along the autism spectrum, while continuing research that will provide a breakthrough cure for autism.

Our Team

Nalini Chandra, M.D.Child Neurologist
Nalini Chandra, M.D., board certified child neurologist and is certified by the American Board of Psychiatry and Neurology in Neurology with Special Qualification in Child Neurology. While her practice focuses on all aspects of child neurology, Dr. Chandra has a special interest in neurodevelopmental/cognitive disorders, autism and headaches. Dr. Chandra received her medical degree from the State University of New York, Brooklyn. She completed a residency in pediatrics at the University of California, Los Angeles, Mattel Children’s Hospital, and a residency in pediatric neurology at Albert Einstein College of Medicine, Children’s Hospital at Montefiore. She is a member of the American Academy of Neurology, Association of California Neurologists, Child Neurology Society and Autism Society of America. She is a Sacramento native and is excited to return and give back to the “community that raised her” after spending the last 15 years training and working with underprivileged urban communities. To learn more about Dr. Chandra or to make an appointment please call (916) 454-6667.

Michael G. Chez, M.D., Child Neurologist
Michael G. Chez, M.D., Director of Pediatric Neurology, has almost 20 years’ experience in the innovative use of drug and immunological therapies for refractory autism and in epilepsy research, treatment and epilepsy surgical monitoring. Dr. Chez received his medical degree from the Indiana University School of Medicine and served his internship and residency in Pediatrics at Johns Hopkins Hospital. He performed his fellowship in Pediatric Neurology at Children’s Memorial Hospital in Chicago and the Cleveland Clinic Foundation in Cleveland, and subsequently received his fellowship training in epilepsy at Rush Presbyterian-St. Luke’s Medical Center in Chicago. Dr. Chez has been certified by the American Board of Pediatrics, and the American Board of Psychiatry and Neurology, with special competence in Child Neurology. He is an Associate professor of Neurology at UC Davis Medical Center. Dr. Chez is the author of numerous articles and recently published a book entitled, “The Medical Management of Autism: A Guide for Parents and Professionals.” To learn more about Dr. Chez or to make an appointment please call (916) 454-6667.

Shawn Kile, M.D., Adult Cognitive-Behavioral Neurologist
Shawn Kile, M.D.Shawn Kile, M.D., is board certified by the American Board of Psychiatry and Neurology and works with the Sutter Autism Team to treat adults with autism and neurodevelopmental disorders. Dr. Kile has a special interest in treating cognitive disorders and has published on topics including neurodevelopmental aggression, traumatic brain injury, encephalopathy, complex partial seizures, neuropsychiatric disorders, and dementia. Dr. Kile received his medical degree from the University of Texas Medical Branch. He completed a neurology residency as well as a psychiatry residency (neuropsychiatry track and forensic fellowship) at the University of California, Davis. He was chief resident in neurology and has recently completed subspecialty training in Cognitive and Behavioral Neurology at the University of California, Davis. He continues to have an affiliation with the University of California, Davis serving as a member of the Volunteer Clinical Faculty in the Department of Neurology. To learn more about Dr. Kile or to make an appointment call (916) 454-6850.

Amer Khan, M.D., Child Neurologist
Amer Khan, M.D., is a child neurologist with special interests in pediatric sleep medicine and general child neurology including epilepsy and headaches. Dr. Khan has been certified by the American Board of Psychiatry and Neurology, with special competence in Child Neurology. Dr. Khan received his medical degree from the University of Karachi, Pakistan. He completed his residency in pediatrics at Cook County Children’s Hospital, Chicago, and fellowship in child neurology at the University of Minnesota School of Medicine, Minneapolis. With each new patient, Dr. Khan collaborates with the child and family to explore all their concerns and neurological symptoms. He works with them in creating an individualized plan of treatment with the goal of improving their quality of life. Dr. Khan also offers many cutting-edge treatment options, including ones for headaches, epilepsy and spasticity. Dr. Khan is an active member of the Child Neurology Society, the American Academy of Neurology and the American Academy of Sleep Medicine. He has been a Sacramento resident for more than eight years. To learn more about Dr. Khan or to make an appointment please call (916) 454-6667.

Christopher A. Lepage, Psy. D., Neuropsychologist
Christopher A. Lepage, Pys. D.Christopher A. Lepage, Psy. D., is a fellowship-trained psychologist with, special training in the autism spectrum and neurodevelopmental disorders. He conducts neuropsychological assessments and autism diagnostic observations for children and adults, and consults with team members including neuropsychology, neurology, social workers, physicians and nurses on each patient’s individual treatment path. A neuropsychological evaluation assists in better understanding of an individual’s functioning in areas such as memory, attention, language and behavior. Dr. Lepage received his master’s in clinical psychology and doctorate in clinical psychology from the Wisconsin School of Professional Psychology. He completed a pre-doctoral internship at Golden State Psychology Internship Consortium and a post-doctoral fellowship at Kaiser Permanente Northern California, South Bay Consortium.  Dr. Lepage is a member of the American Psychological Association, California Psychological Association, International Neuropsychological Society, and National Register of Health Service Providers in Psychology. To learn more about Dr. Lepage or to make an appointment please call (916) 454-6667.

Renee Low, Ph.D., Neuropsychologist
Renee Low, Ph.D.Renee Low, Ph.D., is a fellowship trained in neuropsychologist with specialty training in understanding the relationship between brain function and behavior. Dr. Low has more than 10 years experience working with children and parents affected by autism. Active in research, Dr. Low has participated in trials on executive functioning and autism, and is currently involved in autism research study with Michael G. Chez, M.D. Dr. Low conducts neuropsychological assessments for patients of all ages and consults with team members, including physicians, social workers and nurses. A neuropsychological evaluation assists in better understanding of an individual’s functioning in areas such as memory, attention, language and behavior. This can help provide diagnostic clarity, determine if cognitive functions have been affected by illness or injury, monitor changes in cognitive functions over time, provide a baseline of functioning prior to treatment or surgery, and provide individualized recommendations. Dr. Low received her master’s and doctorate degrees in clinical psychology from The California School of Professional Psychology at Alliant International University in San Diego. She completed a neuropsychology post-doctoral fellowship at the UC Davis Medical Center with the Department of Physical Medicine and Rehabilitation. Dr. Low is a member of the American Psychological Association and the International Neuropsychological Society. To learn more about Dr. Low or to make an appointment call (916) 454-6850.

Ashutosh Raina, M.D., Child Neurologist
Ashoutosh Raina, M.D.Ashutosh Raina, M.D., is board certified by the American Board of Psychiatry and Neurology with special qualification in Child Neurology. Dr. Raina completed a Residency in Pediatrics at Brookdale Hospital, Brooklyn, NY, and a Residency in Pediatric Neurology at Wayne State University; Children’s Hospital of Michigan, Detroit, MI. He is Fellowship-trained in Clinical Neurophysiology with special interest in refractory epilepsy. Dr. Raina is a member of the American Academy of Neurology. Dr. Raina believes the key to a successful relationship with his patients and their families is to see each new case through the patient’s eyes. His practice philosophy is to care more for the individual patient than for the special features of the disease, and he goes above and beyond by offering kind words, a cheerful greeting, or sympathetic look to better connect with his patients.

We work with a number of specialists to provide ancillary care and treatment to our patients, including:

  • Clinical Psychology
  • Gastrointestinal
  • Genetic Counseling
  • Neurosurgery
  • Pulmonology
  • Sleep Consultations
  • Social Work
  • Speech and Occupational Therapy

MMS Article

Sounds too good to be true, but parents are seeing huge gains with their autistic kids.  Is this something we will be seeing more of in the Autism community?

 

http://www.usobserver.com/archive/june-12/mms-myth-or-miracle.htm

MMS – Myth or Miracle?
image facebook twitter imageShare This Article



By Ron Lee
Investigative Journalist

Jim Humble
Jim Humble

The Food and Drug Administration (FDA) takes its regulation job seriously, seemingly targeting anyone who won’t – or can’t – play ball in its high-dollar industry-giants-only club. Unfortunately for Americans, it seems to have forgotten its edict to promote and protect public health.

Of the products that pass the FDA’s “evaluation”, how many cause serious illness or death? LOTS. A few come to mind: NutraSweet (Aspartame) and Saccharin, Avandia, Chantix, Cymbalta, Enbrel, Gadolinium, Heparin, Levaquin, Mesh/Sling Implants, Paxil, Pradaxa, Reglan, Ritalin, Seroquel, Simvastatin/Amiodarone, Tylenol, Yasmin/Yaz, Zicam, many vaccines, and a great many “ food safe” additives the FDA has stamped with their approval. Just watch T.V. and pay attention to the umber of commercials asking people to call an attorney if they have taken any number of “FDA APPROVED” drugs/products that have caused serious harm or death. It is clear, just because the FDA evaluates something as safe, doesn’t mean that it is.

So, when a product comes along that actually does have health benefit, the FDA appears to descend upon it in hopes to squash it from existence. Are they merely protecting the interests of the corporate giants and pharmaceutical behemoths that seek to keep us reliant upon dosages of their products? For the average American citizen, the answer seems pretty clear. “I don’t trust the government, especially the FDA. The American people are sicker now and more apt to be on some prescription drug than any other time in history. How is this good? They [the FDA] keep attacking natural alternatives like raw cow and goat milk, plant extracts, home gardens and supplements that have proven positive results,” says one such citizen, disillusioned with what they call “the bull the FDA is feeding us.”

One exciting and reportedly “miraculous” health product is Master Mineral Solution – commonly referred to as MMS or “Cleansing Water”. By mixing MMS (sodium chlorite solution) and citric acid, it chemically generates the compound, chlorine dioxide (ClO2), which is said to have profound positive health benefits.

So now MMS and many involved with the movement are targets of the FDA. As reported in this edition, Daniel Smith, a man from Spokane, Washington whose business sold the ingredients to make chlorine dioxide in the privacy of your own home, had his home raided by federal agents. Subsequently, his case has been reviewed by two grand juries. It was through Daniel’s efforts that the US~Observer became involved and has since launched an investigation into the legitimacy of the FDA claims, as well as the validity of MMS as a healing remedy.

The US~Observer has received hundreds of personal accounts of MMS healing users of a myriad of disorders, but we needed the truth in the form of documented fact. Then the US~Observer received the blood work of an individual who had been diagnosed with Hepatitis C. The reports were clear, this person had the disease. Reportedly, after the subject treated himself with MMS, there was no longer any sign of Hepatitis in his blood work!

But, this wasn’t the only clinical evidence uncovered.

There was a controlled clinical evaluation of chlorine dioxide (the chemical created by mixing MMS [sodium chlorite] and citric acid) undertaken under the auspices of USEPA HERL #CR805643. It was designed to look into the potential health ramifications on the human body as the EPA was going to begin using chlorine dioxide in water treatment facilities. The outcome of the study as reported in “Controlled Clinical Evaluations of Chlorine Dioxide, Chlorite and Chlorate in Man,” by Judith R. Lubbers, Sudha Chauan, and Joseph R. Bianchine:

“The three phases of this controlled double-blind clinical evaluation of chlorine dioxide and its potential metabolites in human male volunteer subjects were completed uneventfully. There were no obvious undesirable clinical sequellae noted by any of the participating subjects or by the observing medical team … the absence of detrimental physiological responses within the limits of the study, the relative safety of oral ingestion of chlorine dioxide and its metabolites, chlorite and chlorate, was demonstrated.”

Also, according to the Environmental Protection Agency (EPA), who used Chlorine Dioxide to decontaminate office buildings and mail after the anthrax attacks in 2001, Chlorine Dioxide has:

“…been used since the early 1900s.
In 1967, the U.S. Environmental Protection Agency (EPA) initially registered liquid chlorine dioxide as a disinfectant and sanitizer for specific uses, such as animal farms, bottling plants, food processing, handling, and storage plants. It also included other uses, including:

• bleaching pulp and paper
• bleaching textiles
• washing fruit and vegetables
• disinfecting flume water
• disinfecting meat and poultry
• disinfecting food processing equipment
• sanitizing water
• controlling odors
• treating medical wastes
• treating municipal water”

The EPA also says: “Chlorine dioxide kills microorganisms by disrupting transport of nutrients across the cell wall. Chlorine dioxide smells somewhat like chlorine bleach. Chlorine dioxide should not be confused with chlorine gas. They are two distinct chemicals that react differently and produce by-products that have little in common.”

According to the many testimonials of individuals using MMS, it has successfully treated MERSA, cancer, the flu, infections, serious burns, arthritis, arteriosclerosis, stroke, asthma, Lyme disease, diabetes, hepatitis (all strains), leukemia, Lou Gehrig’s disease, HIV, AIDS, Herpes, spider bites, and malaria. It has also been reported that it successfully treats autism.

Basic logic would dictate that if it didn’t work, or it caused adverse reactions, there wouldn’t be so many who openly and fervently support MMS. There are sites all over the internet touting personal experiences with MMS. Groups on Facebook and even YouTube channels have been dedicated to its benefits. It has literally been used by millions around the globe.

Instead of looking into MMS’s potential for the people’s common health, the FDA has chosen to strike out at the claims of its benefits. They are doing this primarily because of the amount of positive personal experiences. You see, MMS has not been “evaluated”. As such, it is potentially harmful in the eyes of the FDA, and they have even issued an alert on its use. But then again, growing your own garden (and sharing food), or milking your own cows is now dangerous too, at least according to the FDA. Do a search on the internet and see how the FDA is attacking these common practices which have been around since the dawn of time! In fact, it appears that any personal medicinal and food choice is being criminalized at an alarming rate. Soon, we will only be able to eat what they tell us; grow what Monsanto provides us; supplement and medicate ourselves with only the “best” unnatural chemicals created in the labs of the corporate partners to the FDA.

“If people let government decide what foods they eat and what medicines they take, their bodies will soon be in as sorry a state as are the souls of those who live under tyranny.”
~Thomas Jefferson

Who would you trust? A cancer survivor who found life in a natural product, or a government agency that tells you to take products that it deems are safe that actually make you ill? Hmmm… tough question.

Through its research, the US~Observer has found more than enough evidence to expose the FDA for what it is; a scheme, with no constitutional authority to exist. It seems designed to keep some people wealthy while the rest of us are programmed into thinking they are there to help.

As for MMS, the US~Observer is conducting tests and is still collecting testimonials. Anyone with clinical proof of healing is asked to send copies of the evidence to: US~Observer, 233 Rogue River Hwy. PMB 387, Grants Pass, OR, 97527; or via email to editor@usobserver.com.

If you would like to learn more about MMS go to www.genesis2church.org or www.jimhumble.biz.


Parasites

At our appointment with our LLMD on Monday, I am going to rehash the parasite subject.  I know we’ve done some hard core ivermectin/albedazole cycles, but I honestly think there are little/big buggers still inside Jackson.  The tricky thing about parasites is that testing for them include a stool sample, which almost always come back negative, so how do I know when they’re gone??  Jackson is still nonverbal, anxious, stimmy, and having major poop issues (loose).  He has the cleanest diet, is on all the biomed supplements, antibiotics and methyl B 12 shots.  Why his lack of progress?  Many of the Thinking Moms say that some of the supplements and B12 shots actually feed the parasites.  I think it’s time to revisit the parasite issue.

Love this mom’s blog…so much amazing information…

http://www.regardingcaroline.com/parasites

It happened.Fishing is the new Build-A-Bear.  Caroline decided she simply loves to fish.Admittedly, she believes we’re at Mickey Lake and she’s about to reel in a big
red gooey fish, but hey, a girl can dream.

Probably the best part of fishing, since we don’t catch anything, is the
anticipation.  Envisioning the big catch.  And isn’t that what us biomed parents
are doing all the time?

Constantly thinking about how we’re going to elicit the next big gain, we open
our tackle boxes of supplements, and choose the ones most likely to deliver a
“big catch.”

Sometimes, it’s easy to decide what to give.  But sometimes, when the
symptoms morph, you’re no longer sure.  You question everything.  Ask
everyone.  But it gets you nowhere.  Further confused by differing opinions
and finding it hard to focus because there’s you child…

Pacing.

And scripting.

And pacing.

And scripting.

Until you can take no more!  And that’s when you throw open the latch, reach
in the box and go with your gut.

:::::::::::::::::::::::::::

At our house, Caroline’s been serenading us with verbal stims for the past 3
weeks.  While talking and humming to herself, she’s worn her pacing pattern
into the floors.

All the while, I’ve been watching, wondering.  What could it be?  Since it’s
onset coincided with the June 4th full moon, I first suspected parasites.

The worms.

One of the hottest topics in the autism community lately, for good reason, is
parasites.  Specifically, how a majority of children with autism are affected by
them.  A good introductory article is: Parasite Alert – 3 signs to watch out for

In summary, here are the 3 red flags you are carrying a parasite:

  1. Chronic digestive issues ~ even with a highly alkaline diet rich in good
    bacteria.
  2. Mental distress anxiety, depression and behavioral changes.
  3. Autoimmune disorders ~ including irritable bowel syndrome.

Sure sounds like they’re describing our kids, don’tcha think??  So many of us
are feeding our kids near ‘perfect’ diets and they still have the above issues.

Treating parasites is no longer on the periphery.  It’s front and center.  A
mainline autism protocol that many believe you must do if you want to achieve
further gains … or reel in your biggest catch.

In the tackle box, there are a myriad of parasite protocols.  Some strictly
natural, some prescriptions, and many, many theories on which is best.

It was a tough choice.  But, for now, with the help of Dr. Usman, we’ve decided
to begin the following at the next full moon (July 3):

Idle hands.

So there I sat, 2 weeks until the full moon, always the fisherman, wondering
what I could do in the meantime.

A brilliant friend with an RD  (Recovered Daughter…. which is often superior to
an MD in this community)
, wrote a blog about Thyroid issues.   Since treating
Caroline’s thyroid more aggressively has been on my list for a while, I thought
maybe it was time.

But then, it hit me.  Somewhere between the glass of wine to celebrate the
“2 months off Diflucan Anniversary” and leisurely skimming “Stop the Thyroid
Madness,” I realized, the thyroid would have to wait.  The unthinkable had
happened………………The god-forsaken yeast was back.

Staring me right in the face and I didn’t even see it.

The pacing.
The scripting,
The verbal stims.
The increased fogginess.
The decreased engagement.

Where was my brain?   In the past, we always had night waking and giggling
with yeast.  But since Bacopa transformed our nights into blissful stretches of
actual rest, I quite naively didn’t suspect the yeast beast.

Which is odd, because it’s usually a tendency to blame everything on yeast.
Climbing on furniture.  Yeast.  Laying on floor.  Yeast.   Doing absolutely
anything out of the ordinary.  Yeast.   You know the drill.

Somehow, I had shifted one hundred and eighty degrees and no longer had
yeast as suspect numero uno.

When I finally saw it, I decided to restart Diflucan, to see what would happen.

The first day was uneventful.  The second & third were marked with
heightened stimmy-ness, but it was different.  She was not as disconnected.
Not in a fog, more engaged.  More communicative.

The nights, though, became reminiscent of nights we’d left in the past since
our love affair with Bacopa began 6 weeks ago.  Awake.  Wide awake.
Scripting.  Singing.  Having the time of her life.

And there I was, back in the kitchen at 3 AM, mixing potions in a feeble attempt
to stop her racing mind.  Just like old times.

In die off hell.

The only consolation was that at least we started fighting before treating
parasites, which surely would’ve bought us a one way ticket on the Yeastville
express.

Lesson learned.

The 500 mg of Pau d’Arco four times a day (added when I took her off
Diflucan), was not enough to keep the yeast in check.  We needed more
players.

I’m working on an improved natural yeast protocol, because at the first sign of
a tic…. and I’m sure there will be one….  the mighty Diflucan’s reign will be
over again.

And why the tics?  As diflucan kills off yeast, the balance in the gut shifts and
bacteria begin to overgrow… even with antimicrobials and massive doses of
probiotics on board.  The Diflucan is too strong. The bacteria love it.  They
enter the limelight, causing tics, OCD and other assorted craziness.

A fish story.

According to Caroline, she’s angling for the biggest red gooey fish in the lake.
There may even be a grandiose story about how she landed it.

But from us, you’ll get a straight report.  Just the facts — good and bad — as
we embark on a more aggressive parasite treatment plan and try to determine
which natural supplements will better control yeast.

Hopefully, the reduction of parasites will reveal even more of Caroline at her
best.  We’re in a prime location.  PANDAS is a distant memory. Round 62 of
chelation is up next.  Our tackle box is pared down and we’re ready for results.

Some big catches are on the horizon.  They are visible from our boat.  We’re
rowing closer and casting out…

Gone Fishing.
Back at dark-thirty.

This entry was posted on June 22, 2012. 2 Comments

Blog about MMS and Autism: www.autismwars.com

I am so intrigued with MMS.  All these super smart, Warrior Moms, are using it and seeing huge gains with their Autistic kids.  They claim that, though following a certain protocol, it rids the body of parasites, mucus and biofilm.  Could this be a piece to the autism puzzle?  These women say yes, and the gains their children are making are convincing me also…

 

JUN05

MMS? WTF? IDK? Huh?

A few months ago I started to see some debate about MMS is the autism community –with dear friends of mine coming down on both sides of this debate.  I was left scratching my head because I had no idea what MMS even was. A quick search of the internet did not give me a good impression… “Bleach water!” That was what was in my mind as I skimmed over all the commentary out there. I was finding myself siding with those against its use. But then I remember that I was added to a group where the use of MMS was being discussed.

I logged onto the group and saw a lot of familiar names.  REALLY SUPER SMART warrior moms, whom I know would never jump in blindly on a new treatment without doing their research –add to that, they were seeing results.  I had to know more.

So I started reading more, emailing people, dusting off chemistry books –thinking and pondering so hard that smoke was pouring out of my ears. I was sent some pages by a friend, that discussed the negative aspects of MMS, referring to it as a chemotherapy.  And for the most part, I am against such things.  I believe in boosting the body’s natural ability to heal itself. I found those pages to be full of factual errors, however, so I found myself not too willing to listen to their opinion of MMS. I was directed to some YouTube videos, that frankly did not answer my questions. I was directed to some files that still did not answer my questions… But I also remembered a thought that had entered my own head over a decade ago… See, MMS is being used to treat HIV in some areas of the globe.  Ten years ago I had the same thought about similar substances… Is there something similar to bleach that could be safely taken internally that would kill HIV? –that was my thought.  I am no chemist and very ADHD, I didn’t give it much thought. Apparently, there are smart people out there who pondered it and figured it out.

Still, I was going back and forth on the issue. I downloaded Jim Humble’s book on MMS and at that point was even more turned off because he kept talking about how one can profit for making and selling the stuff… this comes up like twice in the first couple chapters/introduction of the book.  –Even though he swears he does not profit from it, that he is just getting the word out there…

At that point I kinda walked away from it all. I couldn’t decide, didn’t want to read his book anymore, hadn’t really found my answers… “I’ll pick it up later –much later”

Flash forward to the Autism One conference.  There was going to be an MMS presentation! I was not going to miss it!

Before that Presentation I seemed to have a lot of encounters that I will call sign posts along the way.  I listened to Doctors speaking of viruses and bacteria that are hiding out in the majority of our kids.  I talked to moms about yeast and parasites… a lot. I learned that one reason my child might be a “non-responder” is because ALL that good stuff I have been giving him all this time, was feeding parasites and not actually benefiting him all.  I felt like there was a giant neon arrow flashing over my head pointing me in the direction of the MMS talk… and at that talk, that is where the rest of my questions were answered… Like how it only goes after the bad stuff and not good tissue, how it is converted in the body to harmless substances within an hour and there is no build up of these substances.
My list of questions went on –and I am being vague in this blog on purpose.  This is a seriously off label treatment for CO-MORBID conditions that are sometimes present in Autism. ;) I think you all need to make this journey on you own –think of your own questions, find your own answers, do the footwork yourself so that you are comfortable trying this.

I will say this… My bottles came today, and I found myself going over the “are you sure you want to do this?” check list in my head again. (The answer is YES!)

The biggie… my take away from AO lectures, my own child’s symptoms and history, and from a conversation with a Dr in the sauna, I can’t remember his name! –If I decided to treat Gavin for all these BUGS that have invaded his body, I would be sitting here right now with a pile of pharma pills –anti-biotics, anti-fungals, anti-parasitics, anti-virals… all with known side effects… all that will wreak havoc on his body as we try to balance out the mess… Or… MMS. MMS does the same thing as all of those.  AND It is NOT bleach.  I will post some links below for you to start researching it for yourself.

Yes, I prefer natural methods –but I tried that for years, it didn’t work. Hundreds a month spent on natural products that are supposed to kill bugs, and supplements, and MB12… the whole cast of characters. None of it helped. It often left him more agitated!  I hope to someday get him to the point where all the bad stuff is dead and we can go back to trying to boost his own body to heal and protect itself… but he has been so messed up for so long… MMS for us!

I am starting on the regular dose loading schedule for myself.  For Gavin, it’s the slooooow method. I am comfortable with that.  And I will be logging and blogging every day on our progress.  For a while I will post here and on the website, which I swear is up –I just can’t find a template that I like, so bear with me :)There will be an MMS page on there by tomorrow, and I will link to it from here.

Links:

MMS Autism http://www.mmsautism.com/

The presentation at Autism One, in four parts: (note to my mother, don’t watch it… trust me ;)
part 1:  http://livestre.am/3VW8E
part 2:  http://livestre.am/3VWaQ
part 3: http://livestre.am/3VWhx
part 4: http://livestre.am/3VWn5

Those are good places to start … but do google it, and search out videos on YouTube… MMS, Jim Humble… read it all and draw your own conclusions –as I am not your doctor and this is not medical advice.

Edit to add: Here is a PDF file showing that MMS was given to subjects without any harm.
http://www.autismwars.com/wp-content/uploads/2012/06/Controlled-Clinical-Evaluations-of-Clo2-in-Man.pdf