Archive | April 2012

ARI Conference Recap

What a weekend!  Though I suppose it’s not quite over for us.  We’re at the Denver airport, anxiously waiting our flight home.  Can’t wait to give the kids a hug!!

The Autism Research Institute held a great conference, and Misha and I are coming home with a long list of things to change, implement and further research.  We heard lectures from experts in the fields with many different credentials, PhD, MD, EdD, RDH, MS, LDN, CCN, CN, MA OTR/L, BCBA-D.  It’s impossible to explain everything I discovered, but I’ll try to summarize a few, important, key points I want you all to know about:

  1. Environment is HUGE!   There is stuff in the environment that is bad for us, and we don’t even know it.  These kids (and adults) are sick from the environment.  Environment changes gene expression.  What we eat, the products we use, vaccines, chronic infections, poisons/toxicity/heavy metals, diet, water, dental amalgams, plastic toys, pesticites BPA, electrosmog.  Poisons slow down the metabolic process.  Removing the poisons and clearing the pathways is necessary.  Spectrum kids have challenged detox pathways for all toxins.  As best we can, we need to clean up the environment, remove harmful exposures and build health and resiliency.   Avoid heavy metal exposure wherever you can; convert to non-toxic pesticide option at home; be proactive with school, therapy clinics and parks where your child spends time; consider used (“pre” off gassed) cars and furniture over new; purify the water you drink and the air you breathe; eliminate processed food and beverages and their exposure to plastics; get rid of “stick free” coated pans and skillets.
  2. Biological. There are at least 300-800 genes associated with Autism.  Most of them are not of major affect.  They don’t cause autism, but they can contribute.  More research is needed, but the symptoms of Autism may not be from genetics but from side effects of the debrit.  Children on the spectrum have some biological abnormalities.  There is a genetic predisposition.  Need functional medicine to treat the causes, not symptoms.  Immune dysreguation, inflammation, metabolic/mitochondrial defects.  Kids with Autism need support (supplements) to regulate methylation cycle.
  3. “There is very little in life worth doing that is easy.”  This is going to be a long journey.  Parents need to take care of themselves.  If they are not physically, mentally and emotionally there for their kids, it makes for a difficult situation.  High parental stress results in low family function and poor health…leads to poorer outcomes for affected child.  Kids do and can improve with the right interventions.  The more you try, the more you will find that works.  Families that recover their kids need strength, intuition, intention and grit.  If you are stronger than Autism, you can win, but it takes being strong, smart, intuitive and fearless.  “Even a 1,000 mile journey begins with but a single step.”-Lao Tzu
  4. EAT ONLY ORGANIC!!!  “clean diet.”  What you put in your body is one thing you can control.   Food is information for your body.  Develop a healthy suspicion of food.   When we eat differently, we feel differently.  Food is not always made with your health in mind.  You want to eat/feed your kids nutrient hense food to get the most nutrients per calorie.  In today’s world, Americans get 51% of their calories from flour, and added fats and sugars.  Our body need lots of nutrients to make it work right, and we are blocking ourselves by depriving key nutrients.  Food affects cell growth, inflammation, hormone regulation and more, so if we’re giving our bodies Genetically Modified Foods (GMOs), they send our bodies different messages.  Food is information.  GMO foods can cause infertility and increased infant mortality.  When GMO foods were introduced in 1991, men’s sperm counts have gone down 50%.  Eat more organic foods, Eat a variety of foods, Eat more fruits and vegetables, Eat more nuts and seeds, Use whole grains, gluten free, Cook from scratch, Eat fresh local foods in season, Cooking is self-love, Add herbs and spices, Support your local farmers. **NO ARTIFICIAL SWEETENERS, HIGH FRUCTOSE CORN SYRUP, REFINED GRAINS.  Go back to the basics: Organic, ecofriendly, beneficial fats, beans, nuts, seeds, fermented foods. “Let thy food be thy medicine and thy medicine be thy food”-Hippocrates

So, what causes Autism?  It’s the total load.  Biology and environment, nature and nurture.  Kids are recovering.  It is important to find the right doctor, get the right tests/information, and forge ahead, trying different avenues with the right attitude.

Really, the one thing our family will continue and even tighten up is an all-organic, nutrient dense, wholesome diet.  No GMO foods, a lot of home cooking minimal eating out.  I’m going to make myself cook more, and I’m going to have fun with it.  Ibought an amzing GCCF kid-friendly cookbook at the conference, and I’m ready to try out some recipes.

Misha and I have a list of immediate changes we will implement, but know our journey is long and will continue for years to come.  This conference motivated me and reminded me visualize the positive: Jackson progressing; speaking, playing with friends at the park, being on a t-ball team, playing with Sophie, skiing, going to school, learning happily, graduating from high school and going on to college.

I’ll report back more in the next few days…

Traveling Thoughts

Made it to the airport, on the plane, but barely!  At 10:10am, my dad was driving me and Misha to the San Jose airport for our 12:20pm departure to Denver, then Denver to Newark, New Jersey.  I got a text from Southwest as we exited the freeway toward the SJ airport saying the flight from Denver to Newark was cancelled.  Misha immediately was on the phone with Southwest to figure out a way to get us to New Jersey today.  There were no other flights from Denver to Newark today, all the flights from San Francisco and Oakland to Newark were full, and no red eye flights…aaaahh!  A flight out of Sacramento at 1:25pm, stopping in Phoenix, then onto Newark?  We’ll take it!

Thank goodness Jackson was safe at home with Misha’s mom and Sophie at preschool.  My mom was on her way from Davis to help out in San Jose while we are gone, and my dad was speed racing us to the Sacramento Airport.  Thank goodness we made it to the airport by noon, had time to grab some food (GFCFSF) for the airplane and all without stressing too, too much.

See what your family does for you, sweet Jackson?  We speed from airport to airport to attend a conference to gather more information to better understand you and help you come out of the confusing world you are in.  Jackson, you have so much love surrounding you, so many people are on your side cheering for you and there isn’t anything we won’t do for you.

I’m thousands of feet in the air in the first hour of our trip, reflecting on the past two months.  What a whirlwind of emotions I’ve been through.  Up.  Down.  Confident.  Defeated.  Progress. Regression.  Information.  Stuck.  Appointments. Crush.  Squirt. Supplements.  Herb Drops.  Prescriptions.  It’s a lot!  Each day is jam packed with taking care of others, but it’s something I know I can do, do well and continue for the wellbeing of our family.  It all comes down to having a healthy family.  That’s really all one can ask for.  Health.  Happiness.  Peace.

I still have 3 ½ months to concentrate on Jackson full time before I go back to teaching in the fall.  My mind is racing, wondering if, in that time, I will hear words come out of his mouth.  Will I get a “mommy?”  An, “I want that toy,” a “Sophie always gets that movie,” a “doggies!”  I know he’s got it in him.  Changes are coming.  We’ll eventually be ready to get rid of his crib and get him his “big boy” bed, start potty training (eventually), engage in meaningful activities and making memories together.

As we peel away at the toxins in Jackson’s body, I’m going to have to adjust to a new, healthier boy emerge.  It feels like years away right now, but I know it’s coming.  For now, I’m going to sit back in my airplane seat, relax with my inflatable neck pillow, with my headphones and outdated, 90’s iTunes playlist and daydream about our future with Jackson.

Jackson’s Appointment

Whew!  Jackson’s appointment was at 9:45am, and I am just now getting a chance to sit down to give an update.

It was a whirlwind of an appointment, but we heard what we wanted to hear…Antibiotics!  However, we aren’t starting them right away since  Jackson is going to do a third and final cycle of parasite treatment, which means 20 more days.  After those 20 days, we have the green light and prescription to start antibiotics (Amoxacillin and Zithromax).  We walked out of the appointment with over $500 worth of additional supplements and to support him now and after he starts antibiotics.

We asked about Jackson’s Nagalese levels, and our doctor said that he was sure his levels were elevated, but that we’re not ready to treat it quite yet.  We asked about Jackson’s amazingly crazy amounts of water Jackson drinks in a day, and the doctor said it’s a good thing (except the number of diapers we go through a day).  We asked about Jackson’s recent dirt head-sprinkling habit, and the doctor said it could possibly be due to the bug die off.  I was, and continue to be very impressed with our doctor’s knowledgeable progression in Jackson’s treatment.  He obviously knows what he is doing and is interested in knowing how everything is going to help us every step of the way.

Jackson is going to get more blood drawn mid May to check his thyroid as well as another type of Lyme test.  We then have the biofeedback test May 21st to see if the medicines have taken care of the parasite problem and to see if we made a dent in the Lyme bugs.  May 15th will be Jackson’s first day on antibiotics!  We then meet with the doctor on May 24th to follow up to discuss the biofeedback results, bloodwork results, and to recap how the antibiotic treatment goes.

So really, things are going well.  Every day, we are killing off parasites and Lyme spirochetes and will eventually get to the viruses that lay below.  This treatment process is so complicated, time consuming and expensive, but knowing Jackson will soon make progress and become more present in our lives is all the motivation I need to push on.  May is going to be a big month…I can feel it!

This entry was posted on April 25, 2012. 2 Comments

Glutathione: The Mother of All Antioxidants

http://www.huffingtonpost.com/dr-mark-hyman/glutathione-the-mother-of_b_530494.html

This is a great, informative article to take a look at even if you aren’t sick and don’t have Lyme disease.  I especially like the ‘9 Tips to Optimize your Glutathione Levels’ mentioned at the end of the article.  Glutathione is something that Jackson, Misha and I are now taking everyday, first thing in the morning, on an empty stomach.  This is a great article, that I learned a lot from, about why we need Glutathione.  Glutathione recycles antioxidants, helps your immune system fight infections, helps mental and physical performance, prevents cancer and helps detox  toxins stick onto glutathione, which then carries them into the bile and the stool, out the body).

This is the Liposomal Glutathione that we take:

Something that I recently learned is that when one takes Tylenol, it depletes the glutathione levels.  Acetaminophen (the active ingredient in Tylenol & many other OTC drugs), depletes Glutathione levels in the liver (where it is made & stored).  It can then cause more oxidative damage, free radicals & liver damage. Tylenol is known to cause liver damage & failure.  We haven’t given Jackson any Tylenol since we found out about this.

Nagalese Level and GcMAF

http://thinkingmomsrevolution.com/2012/04/24/speech-finally/

This Thinking Mom is onto something!  She is in the process of recovering her son, Harry.  I know I’ve posted something before about elevated Nagalese levels and GcMAF therapy, and that seems to be one of the key pieces for her son’s improvements.

Two questions for our LLMD tomorrow are how to test Jackson’s Nagalese and Homocysteine levels.

I’ll report back tomorrow after tomorrow’s appointment!

This entry was posted on April 24, 2012. 2 Comments

The Planning

Since Misha and I will be leaving for the Autism Research Institute conference in New Jersey Thursday-Monday, I’ve been busy getting things ready here at home to be ready in my absence.  My parents and Misha’s mom will hold down the fort while we’re gone.  For any of you teachers out there who leave lesson plans for the substitute, that’s what I’ve been busy doing…took me a good 3 hours!  I especially wanted to leave detailed notes on how to give Jackson his medications.  My parents have watched me several times prepare and administer Jackson’s meds, but I know it’s different being on your own.  Here are the ‘lesson plans I typed up to leave for my parents:

Lesson Plans

JacksonMedSched

There’s nothing easy about giving Jackson his meds, and nobody has given him his meds but me.  I’m nervous to be leaving, but know the kids will be in the best hands ever.  Grandma and Grandpa are the best!

I am super excited about what I will learn at the conference…tips on nutritional diets, getting kids to swallow pills, the latest research on causes/treatments of Autism, and possibly a discussion on Lyme Induced Autism?  If there is ever a forum or an open question and answer portion of the conference, I am eager bring up the topic.

We do have a doctor’s appointment on Wednesday that I’m anxiously awaiting, hoping that starting antibiotics is in the very near future.  Should our LLMD set us on the antibiotic path, we probably won’t start them until Monday, when Misha and I return home.

Good things are coming!  Patience, patience, patience!